November 9, 2025

UPDATE

Well, it has been a while, almost a whole year. To put it simply, Beckett has been thriving. We have been just moving through life, which is a wonderful blessing.

This past year we have enjoyed so much fun. Beckett joined the middle school golf team and did really well for his first year and golfing a full 9 holes. It was such a joy to watch him walking the course with his dad and grandpa giving him advice and encouragement. He also takes private lessons to improve his skills. We have been on vacation to Michigan, twice, he went to Miracle Camp, golf camp, the zoo, Peyton Manning Children’s Hospital Homecoming at the Colt’s stadium, the pumpkin patch, Fall Break in Archbold complete with a combine ride, and more. We have made so many family memories. We also welcomed two cousins to the family this year and I cannot explain how much Beckett loves a baby. It is truly the sweetest thing.

Beckett continues to do well from a medical standpoint. He started seeing a behavior therapist this summer to help with some of the issues he struggles with neurologically. She comes to the house and he is always excited to see her. He continues to see a counselor and he loves the one on one time playing and talking with her.

Friday he had an appointment with the Riley Fontan clinic. He goes to this clinic once about every 5 years and has a full day of testing and meeting with multiple specialties. His day began with an echo, with our favorite technician, Nancy. She has been doing them since he first went to Riley. So many people saw him and commented on how they can’t believe how big/old he has gotten. Trust me, we can’t either! He then had a pulmonary function test done. It showed some pulmonary resistance/scarring on the lungs but that is to be expected with kids who have had a Fontan. He went from that to a stress test where they put him on a lot of different monitors and had him walk on a treadmill at increasing speed and incline. He did extremely well on this for his age and condition so they were pleased. We saw a dietician who recommended a few minor changes, but overall his labs looked great. We also saw a psychologist and social worker. He finished the day with a Fibro scan to look at his liver because of the change in anatomy following a Fontan surgery. The rerouting of blood flow puts increased pressure on the liver and these kids are prone to multiple different liver diseases. We won’t get those results for a couple weeks. We continue to be grateful for good health and for a comprehensive medical team making sure kids like Beckett get the best possible care.

So, as a whole, Beckett is doing great. He continues to be a happy kid with a positive demeanor. We couldn’t be prouder of the challenges he continues to overcome. He has worked incredibly hard this year already in school and has the grades to prove it. He was so proud of himself when he brought his report card home. School takes a lot of time and effort for him, significantly more than most kids, so to see positive results has been very encouraging to him. He loves his siblings well and is always looking out for them. As we head into the holidays and especially Beckett’s birthday, we are excited for all this next year has in store. As always, thanks for continuing to be with us on this journey.