May 30, 2013

UPDATE (5/30/13)
Beckett has had another really good day. When my mom and I arrived this morning, the module was closed as they were taking care of some things with another baby. The cardiologist came out to give me an update, and saidBeckett is looking really good and they continue to be pleased with where he is. His arrhythmia had stopped somewhere before we got there, so that was good to hear. The cardiologist also confirmed the beats were coming from the atrium and not the ventricle which is a very good thing. He wasn’t too concerned about it, especially since Beckett had remained stable while doing it. He said there isn’t really any intervention, and they will just continue to watch him should he do it again. The interesting thing is he does it at random times and for such different lengths of time. But, when cardiology says they aren’t worried, it helps us not be worried either.
When the module was finally opened, my mom and I went back and Beckett was sitting on his nurse’s lap just hanging out. He was being so good. She said he had woken up happy both times this morning and was being such a good boy. He was awake for almost three hours around lunch before he finally fell asleep. He therefore slept most of the afternoon, and I was able to get a decent nap as well.
He again had to have his VapoTherm turned back up last night. His blood gas had one number that was a little off, so since they had turned him down to three yesterday, they just turned him back up to four. They will try again to wean him, most likely only going down by half a liter. They are also planning to do a heart catherization in about three weeks to determine where he is in regards to the next surgery. That is the plan, but as we all know, these things are never set in stone. Today was a pretty low-key day, which we always like. Jonny did surprise me today by coming back to Indy. He wasn’t supposed to be back until tomorrow, and it worked out perfectly that I was coming off the elevator as he was about to get on. So, he is back here with us and we can all spend the day together tomorrow. Despite having family time in a hospital, things seem right when the three of us can be here together. Beckett continues to make progress, as slow as it may be. Each day seems to be a little better than the last, and he will come out on top. God is taking him down a very beautiful road.

— with Jonathan Rupp at Riley Hospital for Children at IU Health.

2 thoughts on “May 30, 2013

  1. child of God says:

    Praising God!! Another good day! Nice!

    Praying and praying!

  2. Sharon Crigger-Stokan says:

    Praising God for another good day for Beckett! “…Praise the Lord, praise the Lord,
    Let the people rejoice! O come to the Father, through Jesus the Son, And give Him the glory, great things He hath done!” (and is doing)! Thank you Lord for what you are doing in little Beckett’s life, and Lord, we are still asking you for a miracle for this little boy and his family.

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