July 23, 2013

UPDATE (7/23/13)

Today has been another good day. Beckett was awake most of the morning, which then caused him to sleep most of the afternoon. He was woken up multiple times by things going on in the room (we are very busy getting things ready to go home), so he has been somewhat cranky. He has had his usual moments of playfulness and smiles, but he turns grouchy pretty quickly. Typically a little cuddle time is just the ticket to settle him down. So we haven’t gotten the official word on his car sear study, but they said no news is typically good news, and according to the heart center monitors, Beckett did just fine. We have officially been doing all of Beckett’s care today to prepare us for going home. That includes giving meds, setting up feedings, changing diapers, etc. All the normal baby stuff, plus the extra special care Beckett needs. Of course the nurses double check everything we do right now, safety first! We are staying here tonight to complete the 24 hours of “parent care”. Who knows how tired we are going to be tomorrow. I guess in a lot of ways it is like we are taking home a newborn even though he isn’t. We will figure it out, and settle into a routine soon enough.

A friend in Upland has kindly taken on the responsibility of setting up a meal calendar for us, so here is the shameless plug. Meals will definitely be appreciated and we thank you for helping out in this way. Here is the link you can use to sign up: http://www.takethemameal.com/meals.php?t=ENMX4112. We aren’t entirely sure when we will officially be discharged tomorrow, but it will be sometime in the afternoon. It depends on when we finish parent care and have everything together. The easiest way to determine an ETA, for those who are gathering to welcome us home, will probably be to just put up a post to say we are leaving. Keep your eyes open! And thanks for helping us celebrate such a big day!!

We have spent most of the evening rocking Beckett and loving on him. We are trying to grasp the reality that, as of right now, this is our last night in the hospital for quite some time. Praise the Lord. It just seems so surreal that the day has finally come where Beckett can come home with us. We could not be more grateful for God’s faithfulness to our son, and to us. I can not begin to count how many times in those early days the thought crossed my mind that Beckett may never come home. I only had hope to cling to. Now here we are, hours, NOT days, away from bringing Beckett home. God’s mercy and grace have fallen on my son, and His protection has encircled him from the moment he was born. A wise friend wrote Beckett today, “May we never lose this posture of prayer”. This is my prayer as we return home, that we would remain faithful to the God who has shown himself faithful to us time and time again. Beckett truly is a miracle baby, and while I will never be able to tell you all the reasons why, the simple way to say it is Beckett is alive, and that in itself is a miracle. Praise be to God, forever and ever. Amen.


— with Jonathan Rupp at Riley Hospital for Children at IU Health.

One thought on “July 23, 2013

  1. child of God says:

    Nice!! 🙂
    Praying for a smooth transition into home life. I sure do wish I could be there to welcome you home, but I am just too far away.


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