August 5, 2013

UPDATE (8/5/13)

Well, I made it back down to Indy, but almost as soon as I arrived Jonny had to head back to Upland for a school retreat. He will be gone for a few days, which lends me to lots of time with my son and my mom. I am so thankful she has the summer off and is able to be down in Indy with us a lot of the time. I can’t wait to spend a few days with her.

When I walked into Beckett’s room today it was as though he had some sort of Jedi power to sense my presence because he opened his eyes literally as I walked through the door. He was so happy to see me, which warmed my heart, and we spent some good time playing. He was so happy this evening, and definitely seems more himself than when I left on Friday. He just loves to hear himself talk and make noises. He has also begun putting everything in his mouth. I guess it is about that time. I just can’t believe how old he is. They truly do grow up fast.

We were able to speak with the cardiologist today. He was very encouraging in that once we know this effusion is gone, it shouldn’t come back, and there won’t be any added worry when sending Beckett home. Yes, he still has the collateral vessels they are concerned about, but it will take time before we would see any major effect from those, and we will cross that bridge when we get there. The cardiologist said the effusion was definitely the major problem that landed us back in the hospital, and Beckett may have appeared sicker than he actually was from all the stress he endured once we arrived in the ER. But, at least they were cautious. So, today they pulled his chest tube and turned off his Nitric, and he has been doing great. The main goals for going home are to get him back on the nasal cannula like he was before (or possibly no oxygen at all), and make sure the effusion doesn’t come back. So, hopefully we don’t actually have too much longer.

Beckett is making progress each day, and we are all glad there was a problem that could be fixed. Praying we get him back home soon!

— with Jonathan Rupp at Riley Hospital for Children at IU Health.

2 thoughts on “August 5, 2013

  1. Sharon Grandstaff says:

    Praying you can get him home soon. So glad he responded so well to the treatment. You and Jonny are amazing. You have more strength than anyone I know. I pray that God continues to keep you strong and expect a complete healing for Beckett.

  2. Sharon Crigger-Stokan says:

    Glad that you are back where your heart was, Leah. 🙂 Be assured of continued prayers for Beckett you and Jonny, as well as prayers of thanksgiving for what he has done and is doing in Beckett’s life. Trusting you will be home soon…

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