January 28, 2014

UPDATE (1/28/14)

Quick update:

First, we had another follow-up appointment yesterday in Indy with Beckett’s Cardiologist and GI Doctor. Long story short…Beckett is looking great! Those are certainly the words we wanted to hear. Beckett behaved so well, and charmed nearly everyone he met.

What’s the phrase?:
“Don’t count your chickens before they hatch.”
I’m hesitant to post this, but we THINK we might have gotten requalified for Medicaid. If so, that is a huge blessing! Anyone who’s spent any mildly significant time with me these past few months have known that my mind is always on a million things…but the one thing that was almost always on my mind was getting requalified for Medicaid. It isn’t official, so it’s probably very unwise and foolish to even post this, but we recently received news that we are approved for the Medicaid waiver…and if that’s true, we should get Medicaid Disability for Beckett automatically. Yes, we do have primary insurance, but if you knew the kind of medical bills we’ve racked up with 8 months of living in an intensive care unit with numerous surgeries….we maxed out the primary insurance coverage of 2 million with Beckett within a few months last year. …..crazy. So with that being said, having secondary and even a third tier insurance is very valuable. We still have a lot of meds, doctor appointments, therapy, and even another open heart surgery to go. We need to be “covered.” So, if you think of it, please pray that this “chicken hatches”. This would be a huge answer to prayer.

I’ve been spending my mornings, getting up when Beckett needs his 6:00am meds, and reading the blog we’ve kept since day-1 last year. Needless to say, the month of January was like reading a very suspenseful novel…however, it was OUR day-to-day life. It has been wildly humbling as I recall the events of last year…the pain, the tears, the fear, the insecurities, the doubt…but also the joy, the love, the faithfulness, the testimony, family, friends….it’s kinda hard to properly reminisce upon. So much happened. But I truly cannot help but think about all the joy the headaches lead us to, or the faith the doubt inspired, or the love that washed away our insecurities. Family, friends, and even “strangers” being so very consistent, encouraging, and wilding generous. What an amazing journey this has been…and no matter what the outcome will be, or has been, we are thankful that we have strived to give God the glory throughout the good and the bad. For it is not our will, but His be done. (Luke 22:42)

Furthermore, and on a much lighter note, we did not win the Gerber Photo Contest. Yes, Yes…the winners were cute…but Beckett had to have come close. 😉

Also, months ago, many of you helped us out by providing meals for us while we tried to somehow get our feet back under us. Well, we’ve noticed that we do still have some of your dishes. Please do not be shy in stopping by to pick up what is rightfully yours. Some of them are quite nice! 🙂 I just wanted to take a brief opportunity to throw that out there.

Lastly….we officially have some fantastic 1-year-old photos of Beckett we are dying to post. My friend did such a good job, it’s just been hard to narrow down which ones to share with you all. We promise, we will post some soon.

Thanks everyone. Again, your prayer, support and encouragement is astounding! Oh, and Happy 13 Months Old Birthday today, Beckett!!

#GoBeckett
#ODAAT

4 thoughts on “January 28, 2014

  1. Sharon-Crigger-Stokan says:

    Such an encouraging post. Praise God from whom all blessings flow! Looking forward to seeing the new pictures…love seeing his progress. I continue to pray daily for Beckett, you and Leah and the challenges that you still have that only you know about or can fully understand. Just be assured of daily thoughts, love and prayers being lifted up on your behalf to our Heavenly Father…especially for those “chickens to hatch”. 🙂

  2. I wanted to advise you on checking into getting Children’s Special Healthcare Services as well. I have it for my son, who has Cerebral Palsy. I’m not quite sure what circumstances they all cover but might be worth looking into. You can contact them through your local Health Department. 🙂 God Bless!

  3. Bernadette says:

    Thank you for the update. My boyfriend was in a horrific accident two years ago. From day one he was told he was the fastest to receive Medicare, and also the first in history to get medicare disability as soon as he did. How did this happen? Come to find out, when they ask for doctors and information, they also ask if there are future appointments. What they are basing their case on in addition to the appropriate steps they need to take are the following. Well this person get better? So here is the two key steps you MUST take the sooner the better. 1. get a Doctors letter stating this person will always be a liability to the work force or will always need medical care. 2. Tell them to make a decision on the current information they have and NOT on future medical information. They will wait for all information to make their decision. And, the most important and this is hard……. Call every two days. They told my boyfriend no one has ever called so often. It also helped to send a photo of his medical physical condition. (his body his scar) by way of a fax. So send good black and white photos. So with that said, God Bless you and your adorable family. Hang in there it isn’t like you won’t or can’t you can because you are not doing it for yourself your doing it for each other. Know your mind can and could snap, and get help when you feel this coming, Generally it happens when your not feeling well, but can be fixed rather fast!.. With much love and admiration for your love and endurance. Bernadette (Kathy’s Aunt) And if needed, a patient advocate from the hospital can push things along because the hospital wants their money. 🙂

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