Heart of Beckett

One-Year-Old Photo shoot (2)
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One-Year-Old Photo shoot (1)
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UPDATE (1/28/14)

Quick update:

First, we had another follow-up appointment yesterday in Indy with Beckett’s Cardiologist and GI Doctor. Long story short…Beckett is looking great! Those are certainly the words we wanted to hear. Beckett behaved so well, and charmed nearly everyone he met.

What’s the phrase?:
“Don’t count your chickens before they hatch.”
I’m hesitant to post this, but we THINK we might have gotten requalified for Medicaid. If so, that is a huge blessing! Anyone who’s spent any mildly significant time with me these past few months have known that my mind is always on a million things…but the one thing that was almost always on my mind was getting requalified for Medicaid. It isn’t official, so it’s probably very unwise and foolish to even post this, but we recently received news that we are approved for the Medicaid waiver…and if that’s true, we should get Medicaid Disability for Beckett automatically. Yes, we do have primary insurance, but if you knew the kind of medical bills we’ve racked up with 8 months of living in an intensive care unit with numerous surgeries….we maxed out the primary insurance coverage of 2 million with Beckett within a few months last year. …..crazy. So with that being said, having secondary and even a third tier insurance is very valuable. We still have a lot of meds, doctor appointments, therapy, and even another open heart surgery to go. We need to be “covered.” So, if you think of it, please pray that this “chicken hatches”. This would be a huge answer to prayer.

I’ve been spending my mornings, getting up when Beckett needs his 6:00am meds, and reading the blog we’ve kept since day-1 last year. Needless to say, the month of January was like reading a very suspenseful novel…however, it was OUR day-to-day life. It has been wildly humbling as I recall the events of last year…the pain, the tears, the fear, the insecurities, the doubt…but also the joy, the love, the faithfulness, the testimony, family, friends….it’s kinda hard to properly reminisce upon. So much happened. But I truly cannot help but think about all the joy the headaches lead us to, or the faith the doubt inspired, or the love that washed away our insecurities. Family, friends, and even “strangers” being so very consistent, encouraging, and wilding generous. What an amazing journey this has been…and no matter what the outcome will be, or has been, we are thankful that we have strived to give God the glory throughout the good and the bad. For it is not our will, but His be done. (Luke 22:42)

Furthermore, and on a much lighter note, we did not win the Gerber Photo Contest. Yes, Yes…the winners were cute…but Beckett had to have come close. 😉

Also, months ago, many of you helped us out by providing meals for us while we tried to somehow get our feet back under us. Well, we’ve noticed that we do still have some of your dishes. Please do not be shy in stopping by to pick up what is rightfully yours. Some of them are quite nice! 🙂 I just wanted to take a brief opportunity to throw that out there.

Lastly….we officially have some fantastic 1-year-old photos of Beckett we are dying to post. My friend did such a good job, it’s just been hard to narrow down which ones to share with you all. We promise, we will post some soon.

Thanks everyone. Again, your prayer, support and encouragement is astounding! Oh, and Happy 13 Months Old Birthday today, Beckett!!

#GoBeckett
#ODAAT

Ah….now this is how you take a #nap!
#MaxinAndRelaxin #BabySuave #BabyCardigan

UPDATE (1/15/14)

You all deserve an update, so here we go:

First, a quick update on the Gerber Photo Contest. WE WON!!!! $50,000!! Just kidding. Sorry, I couldn’t help myself. Honestly, I haven’t heard a thing. Part of me wants to think that “no news is good news”….but, I doubt it. I actually just emailed them for any news or results and haven’t heard back yet. We will certainly let you all know if/when we hear anything.

I hope you all have been enjoying all the pics we’ve been posting. I think they are super cute. Beckett is certainly not camera shy and he loves to smile. He really is a really good “baby”…but not so much a baby anymore, I guess by being a year old already, he’s pretty much a toddler now. Anyways…you may have seen the pic of Beckett with his birthday cake. Unfortunately he still doesn’t really know how to eat orally (though we’ve certainly been working hard at it). It was still fun for him to smack the frosting around a little. Beckett is still “tube-fed” through his G-Tube, and this will probably be the case for quite some time. We were warned, and now we are living it…the struggle of learning how to eat when he totally doesn’t understand it at all has been very challenging. This could possibly take us years to fully accomplish. BUT, these were the struggles we were longing for, rather than the struggle of fighting through the battle of life and death. We have a lot to be thankful for.

A good friend of mine (Corey Grunewald) came down from Michigan earlier this week and volunteered his talent in photography, and took Beckett’s “one-year-old-pics.” I’m excited to see how they turned out, and will certainly post a few once we get ’em. Speaking of, we hope to also possibly post a good ole family pic sometime too.

Beckett really is doing well. We are slowly-but-surely…and finally…lining up more of Beckett’s therapy sessions (PT, OT, ST, etc…). This is really REALLY good for him, and I am very optimistic that we will continue to see more and more catch-up progress from him.

Lastly, please pray for us as we are anxious about getting requalified for Medicaid. We really need this to help cover Beckett’s millions of dollars in medical bills. It’s hard not to get too nervous about this, but there is really nothing more we can do one way or another. We’ve definitely done our due-diligence, and are just hoping and praying that this works out for us again this year (as Beckett has yet another upcoming surgery possibly later this year).

Thanks y’all. You guys are so very amazing, and so very encouraging!

#GoBeckett
#ODAAT

#TooCute #GoBeckett #ODAAT

Caption please…..

A very happy lil birthday boy!
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Happy Birthday Beckett!
#latergram #birthdaycake

Beckett at Christmas!
#latergram #nofilter