March 31, 2013

UPDATE (3/31/13)

Happy Easter (once again)

Beckett has been very irritable nearly all day. It is a real challenge to calm him down. In fact, that picture we posted earlier today was snapped during the very brief moments between the calm and tears (obviously we try to only post the “good” ones…who wouldn’t?). Leah and I have been praying for an Easter Miracle all day (again, knowing this may happen or may not…but still trusting that God is still in control).

Dr. Kumar (one of Beckett’s Cardiologists) came in today and gave us a fairly uplifting update. He is very good at communicating difficult news with honesty and hope. He said that the critical areas I posted about a few days ago haven’t really changed and he isn’t really concerned by anything he is seeing. Beckett is still very critical (I mean, he just got put back on a ventilator last night), but in proper perspective, it could be much worse. He mentioned that our surgeon is out-of-town right now (we found out that meant that he is on a safari in Africa….wow), but he’ll be back this week and they will reconvene to figure out a good game plan. That’s good. I like “Game Plans”. But until then, we continue to take it a day at a time asking and welcoming God to perform even more miracles in our son’s life.

One small piece of bad news. You know that chest tube he’s had put in multiple times to drain fluid from his chest? Well, the fluid is back. 😦 This is not good. It is looking like they will need to tap his chest once again. Pray that if this happens (again), that it’ll go well and really help Beckett out. I’m really hating these little things that I know hurt Beckett, but it’s for his own good. How ironic that I allow Beckett to go through these painful situations for his own good wherein I am struggling through this particular situation most likely for my own good (#RefiningFire).

Truly, one day at a time. There seems to be no better perspective than that.

“In Christ, there is nothing I can do that would make You love me more, and nothing I have done that makes You love me less.
Your presence and approval are all I need for everlasting joy.
As you have been to me, so I will be to others.
As I pray, I’ll measure Your compassion by the cross and Your power by the resurrection.”


— with Leah ‘Whiteley’ Rupp at St. Vincent’s Women’s Hospital.

2 thoughts on “March 31, 2013

  1. marcia says:

    praying for complete restoration of his little body in Jesus Name Amen

  2. doriew says:

    Dear Leah and Jonny, Once again your blog has blessed my socks off just knowing of your deep faith for God’s intervening mercy. I pray for him and his parents anytime he comes to mind, which is often. Read this today in my Salvation Army magazine…”Today (Easter) He closed the gates of Hell, and opened wide the doors of Heaven; O help our songs of praise to swell, and join the ranks of those forgiven.” Blessings, Doris

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