Category Archives: Jonny

November 13, 2018

Whelp, we’re back again. Unfortunately we had to make the tough call last night around 2:00am to take Beckett to the ER. He’s “okay,” but they want to send him down to Riley now for further examination (we are at Ball in Muncie). I’ve been up for over 24 hours and Leah worked last night. We’ll keep you posted as we learn more. Prayers appreciated.

November 10, 2018

A few weeks ago we were planning a trip to my home in Ohio. Beckett was going to get to ride in the combine and we were just going to enjoy some time with my parents. Unfortunately those plans were changed when we made the unforeseen trip to the hospital. A few weeks later we were able to make good on those plans…and even on my dad’s birthday. Today, I’m thankful for life, health, family and my heritage. Grateful for another day.

(and thank you cousin JJ for letting us commandeer the combine)

October 28, 2018

“No Problem!”

Thanks for all the prayers and encouragement everyone. We are finally home.

October 27, 2018

UPDATE (10/27/18)

What a smooth day? I arrived this morning to see Beckett sitting in bed with something missing from his nose. No more cannula!!! I could hardly believe it. Somehow they were able to wean him completely off his oxygen throughout the night. So, today was just filled with a lot of playing, walking around, and a few breathing treatments. Needless to say I can probably keep this post short. Though I always hate saying things like this beforehand….it looks like we might be coming home tomorrow! 🙌 Yay! Beckett, however, really wanted to come home today….and, I don’t think was fully understanding the concept of what we were saying when he repeated to us, “‘I’m coming home tomorrow’ right now!” lol No, no….but soon bud…soon.

We are hoping for a discharge around midday, if possible. We are obviously eager to get home and close this chapter. So close. Thank you God for your provision and healing.

#GoBeckett

#ODAAT

October 26, 2018

UPDATE (10/26/18)

Today was a much better day (praise the Lord). We are certainly not the doctors, but I would say we agree and like their plan of action. In essence they want to wean Beckett off his oxygen support and make sure we have proper pain control. Yes, in short they want to clear up the pneumonia. I think we still have another few days in here…but we are hoping to be home by Sunday.

My mom was able to visit today and bring our youngest son, Milo. It was great to see him again…and equally as great when Beckett and Milo seemed excited to see each other. Now, more than ever, Beckett wants to go home…so, we have to try and navigate those conversations carefully.

We’ll just keep this post short. But we are truly grateful for Beckett’s progress. We are also thankful for a lot of “little things.” For example:

– Though we had much better plans in store for this week (as this week is Beckett’s Fall Break), but it’s nice that he isn’t missing school.

– In the same vein, Leah’s mom works in the same school district, so she’s been able to be around and very helpful this week.

– My Mom happened to already be in town this week (for the other fun plans we had), but she has been wonderful in helping us out and watching Milo these past few days.

– When we arrived back at Riley in the ER, Beckett’s actual cardiologist was “on” that evening (there are probably about 20 here), so it was nice to have someone present who knew Beckett so well.

– Even our friend who has done so many of Beckett’s echos was the one who walked into the room to do his echo in the ER. It was just very comforting to see her.

….so many things to be thankful for. We definitely have had some forward progress and are just trying to be patient with the process.

And as always, thanks for the support. The messages, likes, comments, texts, calls…are all very encouraging and kind. People keep asking how they can help. This is a challenging question to answer, and to be honest we’ve hardly taken anyone up on their offers. This doesn’t mean we don’t want or need help, we just don’t like to inconvenience anyone. We’re working on it, and appreciate the offers. Please be patient with us as we navigate that. And thank you for the many offers, perhaps one will land at the right time for us. For now, thanks for all the prayers and kind words for Beckett. It certainly puts life in perspective when you genuinely feel like you were just a few hours away from possibly losing a child. Oh, and thank you to our colleagues and my students….you have been so kind, encouraging and generous. We really appreciate it.

#GoBeckett

#ODAAT

October 24, 2018

UPDATE (10/24/18)

Well, I guess we spoke too soon. Here we are back again at Riley. In true Beckett style he decided to keep us on our toes again. Unfortunately Beckett began to slowly regress last night and certainly into the morning. I went into work a little late this morning but was hoping that with a little time and sleep (and some pain meds), he would be feeling better by this afternoon. However, that was unfortunately not the case.

I received a call from Leah early afternoon which started with, “I’m trying not to freak out, but…..” Which, you obviously never want to hear. I’ll admit that some old emotions definitely came rushing back. She went on to explain that she thinks she needs to call an ambulance…Beckett wasn’t looking good, at all. So, she called an ambulance and I left work. I got home right as the paramedics were taking him out of our house. I quickly ran up to him and saw a limp, cold, unresponsive, purple boy laying on a gurney. To be honest, it was terrifying…he looked dead. They decided they needed to take him straight to Riley, and Leah overheard the paramedic say that they are bringing a 5 year old boy who was apneic (meaning, not breathing). When they hooked him up to a pulse-ox he was satting 12……..12!! 😳 That’s about as close to dead as you can get. The paramedic said it was the worst he’s ever seen.

So here we are, in Riley’s ER waiting on the results of some tests. At one point they were very concerned that his fenestration was clotted (that’s not good) because we had to stop his blood thinners for the surgery yesterday. Turns out that not the case. They are now doing a number of other tests. It’s just so crazy that a simple surgery like yesterday can slingshot into all of this….but this is just too reminiscent of years past. Lots of drama in those early days. And to be honest, I don’t really miss it. 😉

We are feeling a little better now. We still don’t have any answers, but Beckett looks much better. Sooo, they are admitting him to the PICU and now we wait. I think everything is “okay”…so I guess stay tuned.

#GoBeckett

#ODAAT

October 23, 2018

Playing #GoPup (#GoFish) to pass the time. Also, looks like we are getting discharged today. 🙌 Thank God for a smooth day and to everyone for the kind words and encouraging texts. #ODAAT