November 13, 2018

UPDATE (11/13/18)

Well, as many of you saw us post last night (or I guess early this morning), we are at it again. In every true sense this really is starting to feel like the earlier days (nearly six years ago). To be honest, I don’t really know what to say. Yes, we had that “issue” a few weeks ago and have largely been okay since then. I will add that Beckett has never really fully gotten over a cough he’s had since the time of that surgery. In short, he’s woken up the past four nights in a row crying and whimpering in pain…but last night was even worse. He was very blue, satting 40 (that’s really bad), breathing heavily, heart rate elevated, and clutching his stomach in pain. Obviously we are immediately concerned about his heart, but thankfully his heart seems okay. We asked him about his head, his throat, his chest, his breathing…but the only thing he has said is that his stomach hurts. However, he winces in pain so badly from it (and out of nowhere too) that it spikes his heart rate and his oxygen saturations plummet. It’s not fun to be around. To be honest, it’s a little scary. So we brought him in to Ball Memorial Hospital’s ER. They were in for a treat. It’s not everyday they see a 5-yr-old satting 60 or below and the parents seem okay with it. It was endearing (in the most respectful way) how concerned everyone there was. It truly felt like they cared, but it didn’t take long until they referred us to Riley. So, after being up for an entire day and my wife on the clock that evening (last night) we made our way down to Riley…again. I drove back home to Upland to pack up some things and sleep for a few hours. But, we’re back. And perhaps most discouraging is nobody seems to know what to do. They even “quarantined” us (hence the garb, gloves and mask) because they don’t know what Beckett has. And he doesn’t like it. lol He keeps asking us to take it off.

Sooo….here we are. This is everything I know. I guess tomorrow is a new day and we are just praying for answers. Thanks again (as always) for all the encouragement (“likes,” messages, texts, calls, etc). We really do have such an amazing support network. We appreciate you all very much.



2 thoughts on “November 13, 2018

  1. Sharon Crigger-Stokan says:

    Thanks for the update and the info on what is going on. Been thinking of you all and praying all day – and will continue. Praying they find his trouble and are able to resolve it and that he will be home soon.

  2. Sharon Crigger-Stokan says:

    Forgot to say, his little thumbs up is so cute in this picture! What a little trooper! And those eyes – they are telling a lot right now. Again as always, praying earnestly…♥️

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