An interesting day…
As soon as I finished my responsibilities at school today, I drove right back down to Indy. After texting Leah a cute pic of Beckett with the caption “Hi Mom! I’m sleeping good. I miss you!”, she was pleasantly surprised at how quick I was back by his side. I knew it would make her feel better if I could manage to get back down to him as-soon-as-possible….and I was right.
I slept horrible last night and remained in a state of limbo between awake and asleep until well after 3:00am. All I could keep thinking was, “this is gonna ‘hurt’ tomorrow”. Sure enough it did. I say that because I think I’m starting to get sick. My nose is runny, I’m sneezing more often then normal, and I keep clearing my throat way too frequently. This made today even more miserable as I could only (for Beckett’s sake) stand by Beckett’s bed and talk to him (often with my hand in front of my mouth). I didn’t realize just how much I enjoyed touching my son and rubbing his head until it was “taken” from me. But all is well as I peer across the room right now and watch my beautiful wife hold my precious son. It just warms my heart.
We were informed today that the current plan for tomorrow is for Beckett to have a HIDA-Scan. This is in reference to his increasing bilirubin. They need to see if everything is working well in/around his kidneys, gall bladder and pancreas. This involves a trip back over to Peyton Manning Children’s Hospital. Though we are thrilled to possibly see some of our old friends from over there, we aren’t too excited for this transportation.
…for no particular reason…..just uneasy about it.
They weaned his fentanyl again today by .5 (first time in 5 days). So far he is handling it well, so we are very thankful for that. They are also eager to continue to increase his feeding. So far, for the most part, he is handling that well too. This is a really good thing for him, so please pray that this continues to increase at a rapid/healthy rate.
-Pray for the transportation of Beckett.
-Pray for the hida-scan and the results.
-Pray for his bilirubin to go down.
-Pray for him to handle his weaning well.
-Pray for a safe/consistent increase in his feedings.
-Pray for the “care-conference” tomorrow at 3:00pm (that I’ve been talking about for the past week or so).
-Pray for my health
(these are just a few specifics for the day, we always appreciate pray for other-all health, for Leah, our marriage, for safe travels, etc, etc, etc…)
If you haven’t seen the picture I just recently posted, you must check it out. My son is just so darn cute. One day at a time…..Go Beckett, Go!