April 11, 2013

UPDATE (4/11/13)

If you recall, I posted a few days ago that I feel as if I’ve been getting sick. This, in addition to all the emotion yesterday as-well-as overall exhaustion, today has been a challenge. Leah has worn herself out as well, yet we are so thankful she has already put in her hours for the week in Fort Wayne as we could not have anticipated what the backend of this week had in store for us.

As soon as we arrived last night at Riley, they began numerous tests on Beckett…and continued to all throughout the night. They were thoroughly assessing him today until they finally reached a conclusion. They need to do a cardiac cath on him tomorrow and not only evaluate his heart function, but also fix a small portion of his heart that they believe should really help his overall cardiac condition.

Additionally, and while they have to unfortunately reintubate him once again for the cardiac cath, the plan is to do an MRI of his liver/gall bladder area to get an extremely accurate view of what all is needed to repair it. What is planned after those results are analyzed is still to-be-determined.

Beckett has had a “good” day and, to none of our surprise, continues to steal hearts right-n-left. Everyone seems to comment on how cute he is, and “those eyes!!!!”. He has been very chill today and behaved very well during his examinations. Leah got to hold him a few times today, and you could tell that he just loved it! I, unfortunately, have been wearing a mask around him, and even though I had gloves and a gown on, I didn’t necessarily feel that comfortable even touching him much with the smallest possibility of him catching anything from me. That’s some torcherous tension that I attempted to “mask” (no pun intended) all day.

So, I guess I conclude that today was a “good” day overall. We are still very concerned for Beckett’s immediate future, but that ideology conflicts with our #ODAAT principle to simply take this journey one-day-at-a-time. Please pray that tomorrow’s cath goes well, and that they find what they need during the MRI. I do have some good news to share though (sorry, I nearly forgot), Beckett’s direct bili has come down!! Now, it is still high, but not as high as it was….which really is great news! Sooo, we press on and continue to love and cheer Beckett on throughout this journey. And please excuse my preface, but as self-medicating and overused as this sounds and is, I truly do want to continue to give God ALL the glory and trust that we are now here at Riley for a reason. We may or may not ever fully know the reason, but Beckett is not “ours”, he’s a gift and a blessing that we lay at the Lord’s feet entrusting him (Beckett) to His care.

I conclude, and was reminded of, a powerful and applicable scripture posted yesterday by a faithful follower of Beckett’s story (thank you Sharon):

Romans 8:26-27
“In the same way, the Spirit helps us in our weakness. We do not know what we ought to pray, but the Spirit himself intercedes for us with groans that words cannot express. And he who searches our hearts knows the mind of the Spirit, because the Spirit intercedes for the Saints in accordance with God’s will.”

#ODAAT
#GoBeckett!

— with Leah ‘Whiteley’ Rupp at Riley Hospital for Children at IU Health.

2 thoughts on “April 11, 2013

  1. Child of God says:

    Hi there,

    Sounds like a good place for Beckett to be, they sound very thorough.

    You are so right in saying that Beckett is not yours, he’s a gift and a blessing from God. Laying him at the feet of Jesus is the best place for him to be. I love your submission, obedience and love of our Father. I am praying and praying for all of you.

    Blessings,

  2. Thanking God that little Beckett made the transfer to Riley safely and that he has done well with all the poking and prodding that he is enduring. He is one special little boy. Have been in continual prayer for Beckett, you and Leah all day -and will continue to be. Also for those in charge of his care that God will give everyone wisdom beyond their schooling, training and experience to help your precious son. Keep hanging in there! Oh, and you’re welcome for the verse. I have claimed and clung to that verse many times during difficult trials over the years. Praying for your health too and that Leah stays well. Go Beckett…Go God!!

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

%d bloggers like this: