Today has been another good day. They are still tweaking a few things on Beckett, but so far he is handling it well. They decided to wean his milrinone once again today, which I was a little surprised by. But they know what they are doing, so I simply voiced my concerns and then let them proceed however they see fit. Beckett slept a lot today, but when he wasn’t, we were playing together and just hangin’ out. He kept showering me with fantastic lil smiles that were surprisingly hard to capture with my camera. He’s a tricky lil guy! 😉 Soooo, fortunately I was able to update Leah throughout the day with encouraging texts and cute pictures. I was also able to get some school work done, which was definitely an added bonus.
I was surprised today by a visit from a woman and her son. She introduced herself to me by saying, “I don’t know you, and you don’t know me…but I heard about Beckett’s story and we had to meet you guys.” She proceeded to inform me that her 10 year old son, Gabe, has a single ventricle heart as well. She explained that there is hope, and she was very encouraging! What a blessing! We keep meeting and hearing from so many people who we don’t even know, encouraging us and sharing how much of a blessing Beckett’s story has been for them. Moments like these really reinforce just how substantial Beckett’s journey is to not only Leah and I (and Beckett), but to literally thousands of other people. Please know that we appreciate the support and love, and know that we will never fully understand the reach this story has/is/and will have for many years to come.
— with Leah ‘Whiteley’ Rupp at Riley Hospital for Children at IU Health.
Thank you God for good days!!
What encouragement they are!!
We love you so much Beckett Jude!
Fervently praying for you sweetie!
Grandma Linda & PaPa Doug
“For nothing is impossible with God”
How wonderful you met someone with a 10 year old son who has the same condition. That really IS encouraging. 🙂
Continuing to pray and pray for Beckett and you and Leah.