May 19, 2013

UPDATE (5/19/13)

The cardiologist almost made Leah cry today. As he continued to explain his assessment of Beckett’s current heart condition, and when looking at Leah, you could tell that this was yet another emotional moment. We just so happened to arrive at Beckett’s room this morning as soon as the Cardiology team arrived. We began to ask questions and weren’t necessarily prepared for the response we were about to receive. Before I get into anymore trouble with this post, I must clarify…everything the Cardiologist had to say was so encouraging that these emotions were that of joy and relief. I know, I know, that intro was not very nice of me, so I apologize for any emotional harm I may have just now caused…but I couldn’t help myself. Sooooo, more specifically, the cardiologist began to explain that Beckett looks even better now than he did 3 weeks ago, and they are anxious to do another echo tomorrow to take a good look at his Cardiac function. Then……we begin discussing once again another attempt at a Milrinone wean. Leah and I are optimistic that he can do it, especially if the fentanyl is long gone and out of his system. Cardiology has done a great job patiently waiting for this fentanyl wean to be complete, so, in essence, it’s now their turn. Yes, Beckett is on methadone still, but we can wean that later. There are even a few other meds that I think they’d like to get from IV to oral too, but before I get ahead of myself, we aren’t necessarily out of the woods yet with his fentanyl. He is, however, currently handling this wean really well, and so we feel as if this is definitely trending the right direction. So for that, we are soooo very thankful. We hope to never see that word around here again!

Sooo, today has been another good day. Last night, my father got to hold Beckett for a while, which both he and Beckett seemed to really enjoy. However, today my mother was going to hold him and it just never worked out; either he was busy with being fed or something along those lines, or sleeping…and we try very hard to “never wake a sleeping baby.”

Sooo, that’s a wrap. It really has been a busy, successful and even aggressive week, but Beckett handled it quite well…not flawless, but certainly in a manner that made his mommy and daddy proud. We are eager to see what this upcoming week has to hold from a cardiac standpoint, but we will “worry” about tomorrow when tomorrow gets here.

Isaiah 12:4
“Give thanks to The Lord, call on His name; make known among the nations what He has done, and proclaim that His name is exalted!”

One more thing…Leah’s uncle has returned home and is doing ok. He’s on a bunch of new meds, and they are taking it slowly. Thank you for all your prayers for him, we greatly appreciate it!


β€” with Leah ‘Whiteley’ Rupp at Riley Children’s Hospital.

3 thoughts on “May 19, 2013

  1. Well I can see from this update and a couple others that you have a bit of ornry-ness.. πŸ™‚ and it is such a wonderful thing to see that you are more lighthearted. And how great that the tears are tears of joy! Glad that Leah’s Uncle is home recovering. Be assured of continued fervent prayers for Beckett and thanks being lifted to our Heavenly Father for what He is doing.

  2. Doris Wallace says:

    You are onery, you know that! I nearly quit reading because I did not want to hear the rest!!
    But then I am a chicken when it comes to sad news about anyone, much less Beckett! But I promise I will remember this side of you and never quit reading your blog. “God is good all the time…,and all the time, God is Good.! D

  3. child of God says:

    Lol!!! I was a bit suspicious on the message of this post especially since Beckett has been having increasingly good days.

    It is great to hear this news and I praise God for all He is doing!

    Continuing to pray and pray for Beckett and your guys. πŸ™‚


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