May 21, 2013

UPDATE (5/21/13)

Beckett has had a good day today. He slept a lot, and even did “tummy-time” this morning (for some of you men out there, that’s when the baby sleeps on their tummies ;-)). He cooed and smiled a lot today and just behaved really well.

Leah and I went down to the hospital lobby where they had a “Hot-Wheels Exhibit”. We were able to pick out a hot-wheels car, color it, and even package it up in official packaging. It was actually really fun. It was nice to get out of the windowless room for a little while…

We did request for an x-ray for Beckett today because he just seemed to be breathing a little heavy. Rather than Leah and I really thinking something was wrong, we more-so just wanted to confirm that his chest/lungs/ heart all still looked ok. And sure enough, they do! He just hasn’t had an X-Ray for a few weeks now.

Also, he weighs 13 lbs and 4 ounces! That’s awesome! We are very pleased about that. Cardiology was thinking about weaning his Milrinone today because it sounded like he had a really good night last night. However, even though he had a “good night” last night, if you recall from yesterday’s post, he didn’t have the greatest afternoon. So after I politely brought that up, they decided that they will wait another day until they try anything with him. Also remember, we are waiting anxiously for what the Cardiologists and Surgeons decide on Friday morning. Not only will we know more at that time, we were just told that they are going to try to put together another “care-conference” sometime next week (Monday or Tuesday) where we can get “everyone” together again to figure out where we were, where we are, and where we are going. This will be a good thing and something we are very excited about.

Leah is going to be working again tomorrow, so please pray for her to have a good day, safe travels, and for Beckett to “behave” 😉 so that she doesn’t have that to stress about.

Thanks everyone! Love you all!!

1 Peter 5:10
And after you have suffered a little while, the God of all grace, who has called you to his eternal glory in Christ, will himself restore, confirm, strengthen, and establish you.


— with Leah ‘Whiteley’ Rupp at Riley Children’s Hospital.

2 thoughts on “May 21, 2013

  1. Doris Wallace says:

    What a wonderful Scripture selection! I can tell these are not chosen lightly and without thought! Another good day is on my hit parade of praying! Neighbor, D

  2. Sharon-Crigger-Stokan says:

    Didn’t get a chance to reply yesterday (Tues)…but prayers were continuing to be lifted up as well as thanking my God for every remembrance of you. He puts you on my heart, mind and prayers multiple times daily.

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