Heart of Beckett

UPDATE (5/26/13)

Today has been an “ok” day. Beckett has been what’s called tachypneic today where he is breathing kind of fast. As you may know or remember from high school anatomy class, your heart is “connected” with your lung function, and so when breathing is “distressed”, it’s still concerning. His flow on his VapoTherm was recently turned down to 3 liters, unfortunately it got turned back up to 4 today (though his oxygen support has remained strong at 26%).

Everyone is “watching him closely”, as he’s on the verge of doing ok, or possibly not tolerating some of the changes we’ve been making on him as of late. We try hard to not always jump to conclusions that assume any issues he may be having to be directly related to his heart (though oftentimes it is). For example, we think we may actually see a few teeth coming in (not sure though), so some of the irritability may or could very well be contributed to that.

It’s good to have Leah back from work again. I had the privilege to go to the Indianapolis 500 today, which was really cool. However, being in such a concentrated area of thousands of people, very few cellphones were working. This, in addition to simply not being at the hospital by Beckett’s side, did increase the anxiety of the experience….but it was still good to get away for a bit with some friends.

Sooo, it looks like the drama continues. It could be so much worse though, so as my momma always says, “count your blessings.” Beckett is still with us, he’s still fighting, Leah is here, and God is still (and always will be) in control!

#GoBeckett
#ODAAT

— with Leah ‘Whiteley’ Rupp at Riley Children’s Hospital.