Heart of Beckett

UPDATE (6/5/13)

Another good day!! Yay! However, we were told that Beckett had a challenging night last night; not necessarily from a “health” standpoint, just more-so fussy than anything else. As I began to write this update, I spoke out loud what I was getting ready to type, which was, “Beckett had a bad night last night.” However, the nurse who had Beckett last night also has him tonight and heard me say that…she couldn’t help but correct my description of her evening with Beckett. lol She said, “It was NOT a bad night!!” I may have only really been saying that to get a rise out of her…..and it worked. 😉 So, no…Beckett did not have a “bad night” last night, it was a little challenging and he was a little grumpy.

On that note (kinda), we really have come to appreciate and be thankful for the care we are receiving here at Riley. We DEFINITELY miss our St. V/Peyton Manning family, but we have always been blessed with great care. Yes, big and small mistakes have happened….but you know what really matters??…Beckett is sleeping beautifully in the arms of my wife right now after cooing during his entire bath. Yeah, we are still in the hospital. Yeah, we definitely wish we were home. But as Leah has stated before, “If it meant spending a lifetime in a hospital, but it meant keeping Beckett, that would be our new life.” Amen.

I was back in Upland (@ Taylor) all day today for my internship, so what I am typing is second hand material. I’m being told that Beckett had his Echo this morning and that Cardiology said that his heart function actually appears to be a little better! What?! That’s awesome! Now, he did say “a little better”….but shoot, we’ll take “a little better” over “a little worse” or even “looks about the same.” Sooo, this is great news!

Therapeutically, I was told that he sat in his chair for a while today, and that he apparently is developmentally up-to-speed with what’s called “transferring”, where he can transfer one object in his hand to his other hand. So, that’s awesome too! We, and they, are very pleased with his progress.

On to other good news:
Way back in February, Beckett potentially contracted MRSA. It apparently may not have even been a legitamite swab, as in, we’ve been told it may have actually been contaminated. His MRSA never went septic, and ever since all of that we were put in isolation where we have to wear these goofy yellow gowns and purple rubber gloves. Technically, Beckett wasn’t allowed to feel the touch of skin from our hands since then. Sooooo, Leah decided to ask if he is missing out developmentally from not feeling our actual touch…skin-to-skin. Our nurse then passed her concern along, and we then heard back this morning that since we are his parents, as long as we wash our hands thoroughly before-n-after we spend time in his room, we no longer have to wear the purple gloves!!! This is great news! Maybe more great than I can accurately describe through this update. We are truly very happy about this. Furthermore (yes, there’s more), Infectious Disease agreed to do another swab of Beckett’s nose and see if he has MRSA anymore; if he does not, we are Isolation FREE! That would be absolutely fantastic!

Lastly, a running joke around here at Riley since we arrived here back on April 10th is if we will still actually be here in the hospital when their NICU floor moves to their new building they call “The Tower.” We’ve been told its amazing over there. Well, being that they move on June 19th, it appears as if we will still be here. 😉 Well, Leah and her mother got a tour of the new facility earlier today. She confirmed that it really is nice! Apparently the official tours for non-medical personnel begin tomorrow, but we are pretty much medical personnel now. Obviously I am kidding, but they did ask if Leah and her Mom wanted to be the guinea pigs for the tours tomorrow. Anyways, just thought I’d share that with y’all.

We continue to take great, yet subtle, strides forward. My mother shared with me some great scripture this evening I must pass along to conclude this post. Please read these words, they are very powerful! Thanks everyone! #GoBeckett!

Psalm 145:13b
“The Lord is faithful to all His promises and loving toward all He has made”

Psalm 145:1-3
“I will exalt my God the King; I will praise Your name forever and ever! Everyday I will praise You and extol Your name forever and ever!
Great is the Lord and most worthy of praise! His greatness no one can fathom!”

Psalm 92:1-2
“It is good to give thanks to the Lord, to sing praises to Your name, O Most High; to declare your steadfast love in the morning and Your faithfulness by night”

#ODAAT

— with Leah ‘Whiteley’ Rupp at Riley Hospital for Children at IU Health.