July 14, 2013

UPDATE (7/14/13)

What a great day….other than the fact that my parents had to leave early this morning to go back home and my wife had to officially go back to work. She’s such a trooper though. I did get to FaceTime with her today as Beckett was in a very calm and peaceful mood.

Speaking of, Beckett has been in a much better mood today! He was smiling and cooing at whomever came into his room. He is sooo cute….it’s amazing! Cardiology ordered an extra IV dose of Lasix, and I think he’s responding really well to it. The Lasix gets excess fluid off him, and it really helps with his breathing. However, overall, they need to maintain a balance because there is a “thing” such as getting to “dry”….and we don’t want that either. Soooo, another good day…definitely a step in the right direction (but I can’t wait for my wife to come back to us boys!).

In other (amazing) news!:
My cousin’s husband, Scott, in addition to her other cousin and Father-in-law were able to tear out our tub and put in a new one (the whole thing is probably 80% or 90% complete). We have some amazing other friends currently willing to try and finish it off for us by sometime tomorrow. I mean, my goodness…it’s sooo humbling to watch people gather around and help us out for this seemingly insignificant need. It’s a huge blessing, and will be such a burden off our shoulders to know we are bringing our son home (whenever that is) to a clean and functional house. We are so blessed!

Stay tuned. I’m sure there is more exciting “H.O.M.E.” news on the near horizon! Oh, and keep those emails coming. I’m thinking about adding some sort of incentive to overload Beckett’s inbox. I love this idea…and those of you who have participated have been such a blessing with your kind and encouraging words (again, if you don’t know what I’m referring to, just reference the past 3 posts, or so). Thank you!


— with Leah ‘Whiteley’ Rupp at Riley Hospital for Children at IU Health.

2 thoughts on “July 14, 2013

  1. child of God says:

    You have amazing family and friends!

    Continuing to pray!!

  2. Sharon Crigger-Stokan says:

    So happy that you have been able to get your tub and home repairs worked on. Bless your family and friends! Great that Beckett is responding to the lasix. Be assured of continued prayers.

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