A much better day in some regards, yet kind of scary in another.
We had a good conversation with the medical staff in rounds today and got really solid answers from the Cardiologist. There are just some things that still need to be dialed in. Our Cardiologist assured us that there is probably nobody in this building that wants to discharge Beckett more than him, yet his goal is to discharge him in such a way that we are discharged FOR GOOD (well, until his next surgery in a year or two). With that being said, we had a few issues today…
Beckett keeps throwing up. Yes, babies throw up, but for Beckett his spit ups are very traumatic for him. However, what’s all the more scary is that we have had to change Beckett’s formula to a formula with no long-chain fats. This will help his pleural effusion not come back. But this new formula has effected his stools, and his vomit has gotten pretty chunky. Well, we were concerned about this because we were picturing Beckett choking on those chunks during one of his spit ups. Well…..Leah and I returned to Beckett this evening after dinner in which he had just woken up in the lil swing he was in and almost immediately began to spit up. This time, however, it escalated pretty quickly as Beckett’s eyes got huge, he began to arch his back, his face turned purple and Leah firmly demanded me to “Go get someone, he’s choking!!” So I ran out if the room, politely and sternly asked if someone will come into Beckett’s room because my son is choking. They responded very quickly and began to assess him and suction his mouth. It was actually pretty scary for both Leah and I. I think at one point Leah said to me, “Wow, I’m usually pretty calm and collected in emergency situations….I guess it’s a little different when it’s my own son.” So we got Beckett calmed back down and began conversations as to what we are going to do going forward to try to fix this. I think for now they are going to try to go down on the volume of his feeds, but we are hoping to figure out better answers tomorrow.
We are still hoping to go home sometime early next week (I feel as if we say that every week), but if Beckett continues to “misbehave” (no fault to him), it could possibly be longer than that.
I was scolded by Leah for my post last night. You see, I usually try to get her to proofread what I post (for clarity, grammar/spelling, accuracy, and maturity…..she makes me delete things often 😉 ), but last night she had a pretty bad migraine and fell asleep before 10:00pm (which is pretty early for us), and I wasn’t going to wake her to just proofread a post. Well, I don’t think she’s upset that I was being transparent, but I think I came across ungrateful and not thankful for the care we have/are receiving. And I tried to skirt the line the best I could to share my frustrations without being crude/unfair/close-minded. So I should retract a few things I may have said about his care because it isn’t that our nurses and doctors don’t care, I think I just lose perspective at times and am not fair in my “judgement”. So for that, I apologize. I don’t believe it’s wrong to get frustrated, but I do see it as an opportunity to figure out why I’m frustrated and try to work through that situation with a different set of eyes, ya know?
Anyways, that was today. Fairly good…yet really scary! But Beckett is still here, and we have been blessed with another day. To God be the glory. “May You please continue to heal my son, in Jesus name!”