Heart of Beckett

UPDATE (8/16/13)

As Leah and I arrived this morning, we were anxious to speak with cardiology about a “game plan”. Even more so, we were eager to talk with OUR Cardiologist (who we knew was on service today). We were greeted by a student and resident who certainly did their best to explain what all everyone talked about this morning about Beckett. It did, however, get to a point where I had to politely ask if we could just speak with our Cardiologist once he got a moment. It wasn’t too much later when our Cardiologist then walked into the room. He is great! He has a charisma about him that just exudes confidence, maturity, experience and humbleness. It’s fantastic. Have I mentioned that we like our Cardiologist?! 😉 Anyways, I basically had to tell him that Beckett’s puking (which has been resulting in choking) just doesn’t seem acceptable to me. He borderline cut me off and said, “It isn’t…(and)…we’re gonna figure this out.” He listened to all our concerns, he left, made some phone calls, had some answers, and before we knew it we were executing a new plan.

Beckett is now on a new formula. Now, this formula isn’t AS ideal as what he was on to treat the chylothorax (that fluid that developed around his lungs that initially brought us back into the hospital nearly 3 weeks ago now), but after consulting with senior dietitians, this was what they decided is the best option to pursue for right now. He was very convincing, and currently, we feel comfortable with this plan.

Beckett also hadn’t pooed in over a day. A concern that I have been bringing up consistently the past day and a half or so. However, we were literally just told that he did a BIG one while we were gone for dinner. Yay! Never knew I’d cheer for something like that.

Moreover, Beckett continues to do well on being weaned off his oxygen. He isn’t completely off (by any means), but we feel like we are awfully close to getting back to where we were when we were home a few weeks ago. Unfortunately we feel like we are still another week away from actually going home…but at this point I’m more tempted to start thinking that way in order to align myself in such a way to be pleasantly surprised if that happens to be an overestimation.

#GoBeckett
#ODAAT

Psalm 37:7
Be still before The Lord and wait patiently for Him.

— with Leah ‘Whiteley’ Rupp at Riley Hospital for Children at IU Health.