August 28, 2017

UPDATE (8/28/17)
A few days ago (on the 26th), we hit our 4 year anniversary of when we finally got home from the hospital with Beckett “for good” after 8(ish) long months. For us personally, that is a date worth celebrating.
My, my…how we’ve come a long way. Not only are we celebrating a notable anniversary, we also have news for you. Since just a few months into Beckett’s life he has had a g-tube. This is a little “button” on his tummy that looks like a valve on an inflatable toy. This g-tube has allowed us to give Beckett both his tube feedings and his medicine. Since January 2017, Beckett’s doctor has been lessening the amount of feedings he gets each day and as of last Monday, Beckett is finally off all his tube feedings! This is HUGE! He now has to provide his entire caloric intake on his own without the help of his tube feedings. Though it has only been a few days, I am proud to say that he has been doing great! Not to get too graphic, but, when Beckett first started with his therapist (who is part of the family now), he would literally puke if you simply touched pudding to his lips. Now, years later along with hundreds of hours of therapy….he is eating on his own! To be frank, this was a very challenging part of our journey. He still has to prove he can gain weight on his own before they officially remove the button, in addition to learning how to take his meds orally. You see, I distinctly remember the doctors telling me that this would be one of our greatest struggles when we go home. And I can remember thinking (while not certain if I had another day with my son), “I long for those kind of struggles.” And though I still hold to that perspective (because those 8 months in the hospital were the darkest days of our lives), these past few years have not been easy. We have taken 2 steps forward and 1 step back in the progress of eating that this post seemed forever way. Yet, here we are…..potentially only a few months away from removing one of the last steps to this journey. It is hard to believe.
So, if you’ve been following us long….and even if you are just now joining the journey with us, we are at a very VERY significant milestone.
Stay tuned, but feel free to join us as we celebrate this hopeful journey of life and miraculous healing.
One day at a time…


5 thoughts on “August 28, 2017

  1. Elaine Parrish says:

    Love love love this news!!! So glad you can see the light on this journey. Keeping you all in my continued prayers. Your family is beautiful, thank you for sharing your journey.

  2. Cindy Holloway says:

    I’ve retired from IWU as of June 2nd. Please update our email: so we can stay tuned 🙂 Great news!!

  3. Patsy Bryant says:

    Thank you, Jesus! What a journey,…with the Master Healer and Deliverer,…Our response? Worship,…simply worship! Thank you, Rupp Family, for bringing all of us on board for this amazing journey of worship,..AND special times with your “little man!”

    ~The Bryant Family

  4. Mandy Cassidy says:

    I saw first hand some of his struggles with eating and I am so excited to hear this! Go Beckett!

  5. Sharon Crigger-Stokan says:

    Oh my, tears of joy for Beckett and your family and tears of thankfulness to our Heavenly Father for what He has done for your little, now big, guy! Way to go Beckett and Mom and Dad! Have been praying with you for this day, and are rejoicing with you! Be assured of continued prayers as you are in the home stretch of “no button”. Thank you for sharing your lives, your ups and downs over the years and being so real and transparent. You all are loved! Praise God from whom all blessings flow…!

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