A few days ago (on the 26th), we hit our 4 year anniversary of when we finally got home from the hospital with Beckett “for good” after 8(ish) long months. For us personally, that is a date worth celebrating.
My, my…how we’ve come a long way. Not only are we celebrating a notable anniversary, we also have news for you. Since just a few months into Beckett’s life he has had a g-tube. This is a little “button” on his tummy that looks like a valve on an inflatable toy. This g-tube has allowed us to give Beckett both his tube feedings and his medicine. Since January 2017, Beckett’s doctor has been lessening the amount of feedings he gets each day and as of last Monday, Beckett is finally off all his tube feedings! This is HUGE! He now has to provide his entire caloric intake on his own without the help of his tube feedings. Though it has only been a few days, I am proud to say that he has been doing great! Not to get too graphic, but, when Beckett first started with his therapist (who is part of the family now), he would literally puke if you simply touched pudding to his lips. Now, years later along with hundreds of hours of therapy….he is eating on his own! To be frank, this was a very challenging part of our journey. He still has to prove he can gain weight on his own before they officially remove the button, in addition to learning how to take his meds orally. You see, I distinctly remember the doctors telling me that this would be one of our greatest struggles when we go home. And I can remember thinking (while not certain if I had another day with my son), “I long for those kind of struggles.” And though I still hold to that perspective (because those 8 months in the hospital were the darkest days of our lives), these past few years have not been easy. We have taken 2 steps forward and 1 step back in the progress of eating that this post seemed forever way. Yet, here we are…..potentially only a few months away from removing one of the last steps to this journey. It is hard to believe.
So, if you’ve been following us long….and even if you are just now joining the journey with us, we are at a very VERY significant milestone.
Stay tuned, but feel free to join us as we celebrate this hopeful journey of life and miraculous healing.
One day at a time…