Heart of Beckett

UPDATE (6/20/18)

It’s time….time to close the chapter (in a sense) to this long journey. Tomorrow (6/21/18), Beckett has his last (we hope and anticipate) procedure. This past December we wrote a post (sorry it’s been so long again) explaining how well Beckett is doing. However, we also explained that Beckett is still satting low. His low sats are due to a fenestration that hasn’t naturally closed after his last open heart surgery (Fall ‘16). This is something our Cardiologist has kept a close eye on. With that said, it’s now time to close the chapter.

Tomorrow morning at 11:30am Beckett will have another cardiac-cath at Riley Children’s Hospital. He’s had many of these, but this one is about as close to a “book-end” as it gets on Beckett’s LONG journey to correct his heart condition (HLHS). We are anticipating this to go very smoothly, but it’s hard not to think about things going wrong during the cath. Beckett doesn’t really understand what’s happening tomorrow other than if you’d ask him he’d say, “We are going to the doctors to fix my heart.” (it’s quite endearing) We are being told to plan on spending the night with him, but are hoping to be discharged to go home the following day (Friday).

So, may we now say, “Thank you!” Thank you for the hundreds, perhaps thousands who have followed this journey since December 28, 2012. It sure was rough at the beginning and has been the definition of a marathon since, but you all have been so incredibly considerate and encouraging. We are so grateful. Our journey with God throughout all this has been strengthening and edifying. It is safe to say we aren’t the same people, spouses, family or friends we were five years ago. Our faith has been stretched. Our marriage has been challenged. Our family has grown. We are so grateful for this journey, and are equally excited to put it in our rear view mirror as a memory of what was. We have scars (literal and figuratively) to remind us of the past, but they are now a reminder, a story rather, of faithfulness, tears, miracles, sleeplessness, joy and laughter of an incredible little boy named Beckett Jude Rupp. If you haven’t had the chance to meet him yet, he’s quite the joy. He has such a vibrant imagination, he witty, he’s loving, and occasionally a stinker! 😉

So I’ll end with Luke 1:46-49:

“…My soul glorifies the Lord

and my spirit rejoices in God my Savior,

for he has been mindful

of the humble state of his servant.

From now on all generations will call me blessed,

for the Mighty One has done great things for me—

holy is his name.”

One Day At A Time. We’ll keep you all posted on how tomorrow goes. And again, thank you (those who are reading these still), and thank you to all those who started this journey with us. We are almost done.

#GoBeckett

#ODAAT