June 20, 2018

UPDATE (6/20/18)

It’s time….time to close the chapter (in a sense) to this long journey. Tomorrow (6/21/18), Beckett has his last (we hope and anticipate) procedure. This past December we wrote a post (sorry it’s been so long again) explaining how well Beckett is doing. However, we also explained that Beckett is still satting low. His low sats are due to a fenestration that hasn’t naturally closed after his last open heart surgery (Fall ‘16). This is something our Cardiologist has kept a close eye on. With that said, it’s now time to close the chapter.

Tomorrow morning at 11:30am Beckett will have another cardiac-cath at Riley Children’s Hospital. He’s had many of these, but this one is about as close to a “book-end” as it gets on Beckett’s LONG journey to correct his heart condition (HLHS). We are anticipating this to go very smoothly, but it’s hard not to think about things going wrong during the cath. Beckett doesn’t really understand what’s happening tomorrow other than if you’d ask him he’d say, “We are going to the doctors to fix my heart.” (it’s quite endearing) We are being told to plan on spending the night with him, but are hoping to be discharged to go home the following day (Friday).

So, may we now say, “Thank you!” Thank you for the hundreds, perhaps thousands who have followed this journey since December 28, 2012. It sure was rough at the beginning and has been the definition of a marathon since, but you all have been so incredibly considerate and encouraging. We are so grateful. Our journey with God throughout all this has been strengthening and edifying. It is safe to say we aren’t the same people, spouses, family or friends we were five years ago. Our faith has been stretched. Our marriage has been challenged. Our family has grown. We are so grateful for this journey, and are equally excited to put it in our rear view mirror as a memory of what was. We have scars (literal and figuratively) to remind us of the past, but they are now a reminder, a story rather, of faithfulness, tears, miracles, sleeplessness, joy and laughter of an incredible little boy named Beckett Jude Rupp. If you haven’t had the chance to meet him yet, he’s quite the joy. He has such a vibrant imagination, he witty, he’s loving, and occasionally a stinker! 😉

So I’ll end with Luke 1:46-49:

“…My soul glorifies the Lord

and my spirit rejoices in God my Savior,

for he has been mindful

of the humble state of his servant.

From now on all generations will call me blessed,

for the Mighty One has done great things for me—

holy is his name.”

One Day At A Time. We’ll keep you all posted on how tomorrow goes. And again, thank you (those who are reading these still), and thank you to all those who started this journey with us. We are almost done.

#GoBeckett

#ODAAT

3 thoughts on “June 20, 2018

  1. Sharon Crigger-Stokan says:

    You all have especially been on my heart lately – this must be why. God knew and I believe He was promoting me to pray though I didn’t know specifics.

    While I do keep up with your family on Facebook to some extent, I have been wondering how Beckett has been doing. So I assumed no news was good news, and he looks so good in the pictures that you post.

    Because of my life experiences, I get or understand the mixed emotions of being excited for this chapter to come to a close and yet the understandable apprehension of Beckett going through this procedure.

    He is such a brave little trooper…Beckett’s got this because HE has your little guy in the palms of His mighty Hands…

    Be assured of my prayers,, and while we have never met, my love for your whole family. Thanks for the update and I’ll be watching for the news of Beckett’s successful procedure. 🙂 Prayers for the doctors and nurses as well as you all including Beckett’s grandparents tomorrow. To God be the glory!

  2. Jill Townsend says:

    I’m late to Beckett’s journey but so honored I got to meet him and your family. I’ll be praying that everything goes well for him. He’s such a sweet boy! Thank you God that this family is seeing the light at the end of this long tunnel. #GoBeckett

  3. Katie Kestler says:

    Waaaay back in the beginning, I was honored to be able to care for Beckett at PMCH. I so enjoy reading that he’s doing so well. I think about him often. 😁

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