June 21, 2018

UPDATE (6/21/18)

Whelp, it’s done. I’m sitting here next to him right now and though he’s finally awake, he is a little loopy.

Surprise, they decided not to close the fenestration. However, after “getting in there” they discovered that in closing the fenestration Beckett’s heart function (/cardiac output) decreased up to 60%. Furthermore, they did find a few collaterals that they decided to coil. Blocking these collaterals did help increase his overall oxygen saturation levels by a few points (we’ll take what we can get).

Sooooo…..unfortunately the closing of this fenestration may still happen in the future, but not anytime soon. We still feel as if this was a huge milestone and are very pleased to have it behind us. Oh, also, they may even discharge us as early as today.

Thanks again for all the prayer and support!



One thought on “June 21, 2018

  1. Sharon Crigger-Stokan says:

    Sorry to hear they were unable to do the closing , but good to hear that they were able to help with his O2 levels in other ways. He sure is a trooper… As are you all. It is not easy to shoulder these concerns as a parent – so thankful you have the Lord to lean.on, and a wonderful family to support you. Prayers will continue daily as always.

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