Heart of Beckett

UPDATE (8/13/18)

And just like that, Beckett started Kindergarten. I’m writing this post because of that, but also because we’ve been meaning to update you all about something for weeks now.

Other than Beckett’s last procedure he had this summer (the Cath), his final big step was/is removing something from him he has had since he was about 3 months old. Since Beckett missed the critical stage of learning how to eat, he needed to rely on food that would simply pump straight into his stomach. This was one of the many machines he had to carry around (probably the most predominant one). If you recall Beckett playing in public with a tiny little black backpack on, that was his g-tube pump. I remember very clearly being told in the hospital that getting to the point where he no longer needs that will take a long time and a lot of patience (and it sure has).

Well, a few weeks ago we received the “green light” to take it out….ourselves. We were told that it could close up within a few days, and, to be honest it began to look like it was. Unfortunately we are battling a little bit of consistent leakage. So, at some point we may have to take him in so they can close it completely. However, this post is supposed to be good news. Soooo, “It’s out!!!” That’s a big deal! His therapist (we drove to see in Fort Wayne weekly for years) did a fantastic job with him and certainly became a part of our family. Thank you, K!

With all that said, we are hoping and praying that it closes soon and that he does a great job “catching up” a little in Kindergarten this year. He’s a bright and curious boy, and we think he has another great teacher to help take him along his personal journey of learning.

As always, thanks for the consistent prayer and support. We still feel all the love.

#GoBeckett

#ODAAT