August 13, 2018

UPDATE (8/13/18)

And just like that, Beckett started Kindergarten. I’m writing this post because of that, but also because we’ve been meaning to update you all about something for weeks now.

Other than Beckett’s last procedure he had this summer (the Cath), his final big step was/is removing something from him he has had since he was about 3 months old. Since Beckett missed the critical stage of learning how to eat, he needed to rely on food that would simply pump straight into his stomach. This was one of the many machines he had to carry around (probably the most predominant one). If you recall Beckett playing in public with a tiny little black backpack on, that was his g-tube pump. I remember very clearly being told in the hospital that getting to the point where he no longer needs that will take a long time and a lot of patience (and it sure has).

Well, a few weeks ago we received the “green light” to take it out….ourselves. We were told that it could close up within a few days, and, to be honest it began to look like it was. Unfortunately we are battling a little bit of consistent leakage. So, at some point we may have to take him in so they can close it completely. However, this post is supposed to be good news. Soooo, “It’s out!!!” That’s a big deal! His therapist (we drove to see in Fort Wayne weekly for years) did a fantastic job with him and certainly became a part of our family. Thank you, K!

With all that said, we are hoping and praying that it closes soon and that he does a great job “catching up” a little in Kindergarten this year. He’s a bright and curious boy, and we think he has another great teacher to help take him along his personal journey of learning.

As always, thanks for the consistent prayer and support. We still feel all the love.

#GoBeckett

#ODAAT

2 thoughts on “August 13, 2018

  1. Sharon Crigger-Stokan says:

    Such wonderful news about being feeding-tube free! Bless his little heart and what a wonderful milestone to celebrate! Praise God! Will just be praying him through the healing/closing need. It is so exciting for him to be going to kindergarten! Wow! That is also a big milestone! Way to go sweet Beckett! Still praying daily for your miracle boy! ♥️

  2. Bernadette Giacona says:

    Oh my goodness. God bless little Beckett May he start a life of true freedom. I know the situation of the feeding back pack but the medication and the liquid that is so vital. I had a customer on it from the age of 20. One pill a day is $100 and will not be replaced if lost. My heart and prayers go out to your family and my happiness also Thank you so so much and I look forward to the High School post!

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