October 23, 2018

UPDATE (10/23/18)

For those of you still following along, we are at it again. We just checked in this morning at Riley Children’s Hospital for another minor surgery. This time it’s to surgically close up his g-tube site. You may recall back in July we were given permission to take his feeding tube (g-tube) out. Though often these sites close up on their own, Beckett’s g-tube might have been in for so long that the scaring won’t allow it to close up without an actual procedure.

So, here we are again waiting for the doctors to take our little bub back for another operation. On our drive down last night I looked over at Leah and said, “Sooo, this is it…right? No more after this.” In which she laughed and said, “Yeah, we keep saying that…” So, we think “this is it” for a while. We think. This is a significant last step to close the chapter….but really, is the chapter ever really closed? His journey is always on our mind because we live it every day. There were very dark days we never want to go through again, but we are still grateful for the journey. We’ve gotten to see our son be so brave, we’ve come to value his life more than we thought possible and love deeper than we knew we could love. I’d say that Beckett has even deepened our love for Milo. If you’ve gotten to know him and his heart (literally and figuratively), you’ve see just how big his 1/2 heart is. He’s such a kind, social and funny little boy. What a true blessing he is.

Sooo, in the midst of typing this they actually came back to take him in for the surgery. It’ll take about an hour and a half and it’ll be done. Thank you all who have followed us this far. It’s both encouraging and humbling.



2 thoughts on “October 23, 2018

  1. Sharon Crigger-Stokan says:

    Thank you for this update and sharing life with us. Praying for your little guy and the surgeons right now.

    Even though I’ve never personally meet Beckett or your family, I can see in his pictures – those big bright eyes and that beautiful smile his zest for life!

    When you go through valleys and mountains like your family has, you learn very quickly to love deeper and cherish stronger than you ever could imagine all those close to you!

    Praying during this time… Look forward to hearing his good report. Hugs to your family!

  2. Kristin Blatz says:

    Continuing to pray! Can’t wait to see what God is going to continue to do in his life!

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