UPDATE (3/3/13)
-another ‘rough’ day-
I must begin by claiming that ‘perspective is everything’. Beckett has had much worse days than today, but we just feel as if he’s had a small string of rough ones.
In recapping the day with Leah, we couldn’t necessarily think of any disastrous things that happened today, yet somehow it seemed quite taxing once again. I personally feel weaker than I have in a while. But Beckett is currently sleeping in his mother’s arms, and for a brief moment, life somehow feels normal.
Beckett’s hematocrit was low today (predicted by Leah), so he is currently getting more blood. He always responds really well though to any transfusions. Unfortunately the NICU just implemented a new policy where his feeds have to be shut off for a few hours prior to the transfusion, during the transfusion, and 4 hours after the transfusion. So as a result, he still needs what’s called D10 (sugar water) to keep him hydrated and his blood sugar up during the transfusion. Well, if you’ve been following closely, you may recall that he does have a PICC line, but that it’s for any sort of ‘IV’. And with the D10 and the Transfusion of blood happening at the same time, Beckett had to be given another IV line again. This little man has been poked and prodded so many times, it just breaks my heart when I really think about it. This, however, will be a good thing for him in the long run (like most things he’s gone through…’necessary evils’), it’s just difficult to watch him cry from pain and discomfort.
Beckett also had multiple X-Rays today along with an UltraSound to check on his pleural effusion. He still has a small effusion, but they are watching it closely.
I want to reaffirm you all that we really do diligently try to read most (if not every) post/comment (both on Facebook and the Website) in addition to all the ‘likes’. The support is astounding (as I keep saying), but it’s greatly encouraging and appreciated.
-another ‘rough’ day-
I must begin by claiming that ‘perspective is everything’. Beckett has had much worse days than today, but we just feel as if he’s had a small string of rough ones.
In recapping the day with Leah, we couldn’t necessarily think of any disastrous things that happened today, yet somehow it seemed quite taxing once again. I personally feel weaker than I have in a while. But Beckett is currently sleeping in his mother’s arms, and for a brief moment, life somehow feels normal.
Beckett’s hematocrit was low today (predicted by Leah), so he is currently getting more blood. He always responds really well though to any transfusions. Unfortunately the NICU just implemented a new policy where his feeds have to be shut off for a few hours prior to the transfusion, during the transfusion, and 4 hours after the transfusion. So as a result, he still needs what’s called D10 (sugar water) to keep him hydrated and his blood sugar up during the transfusion. Well, if you’ve been following closely, you may recall that he does have a PICC line, but that it’s for any sort of ‘IV’. And with the D10 and the Transfusion of blood happening at the same time, Beckett had to be given another IV line again. This little man has been poked and prodded so many times, it just breaks my heart when I really think about it. This, however, will be a good thing for him in the long run (like most things he’s gone through…’necessary evils’), it’s just difficult to watch him cry from pain and discomfort.
Beckett also had multiple X-Rays today along with an UltraSound to check on his pleural effusion. He still has a small effusion, but they are watching it closely.
I want to reaffirm you all that we really do diligently try to read most (if not every) post/comment (both on Facebook and the Website) in addition to all the ‘likes’. The support is astounding (as I keep saying), but it’s greatly encouraging and appreciated.
Isaiah 43:1, 2
But now, O Jacob, listen to the L ord who created you. O Israel, the one who formed you says, “Do not be afraid, for I have ransomed you. I have called you by name; you are mine. When you go through deep waters, I will be with you. When you go through rivers of difficulty, you will not drown. When you walk through the fire of oppression, you will not be burned up; the flames will not consume you.
— with Leah ‘Whiteley’ Rupp at St. Vincent’s Women’s Hospital.
Heart of Beckett 
Hello! I just want to let you know I have been praying for Beckett from his birth and I will continue. You (all of you) have been heavy on my heart today – causing me to pause and just lift you before our LORD often. Just know you are being lifted in prayer! I don’t believe we have met yet, but I look forward to meeting you someday.
~Della Hayes
So proud of you Jonathan and Leah!
Your love and devotion to The Lord is
Your strength! Thank you for being
Such GREAT parents to Beckett!! I love
That little guy SO MUCH!!!!!!!!
Mom