March 14, 2013

UPDATE (3/14/13)

Psalm 119:105
Thy word is a lamp unto my feet, and a light unto my path.

I was reaffirmed with this scripture multiple time these past few days by way of a fantastic conversation with Dr. Habecker (Taylor’s President), and in one of my classes from my professor, Dr. Bedi (Provost Emeritus). I feel as if God is simply trying to pound this principle into my thick skull:
‘One. Day. At. A. Time, Jonny.’ (my paraphrase)
I am also reminded once again of Matthew 6:34 – ‘Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.’ I know I’ve shared this idea multiple times before, but please humor me as I therapeutically just need to consistently be reminded of this truth. This concept is by far the best and most helpful advice I’ve received throughout this entire journey. Live your days one at a time, do not worry about tomorrow, just take it one step at a time.

Now onto the main event. How cute is lil Beckett in this picture?! I mean, come on…it doesn’t get much better than this (sorry, I cannot help it). I was in classes all day today and did not get down to Indy until nearly 7:00pm. I wanted to come back to his room after dinner to snap a few pictures of him smiling for you guys, but he was ‘sleeping like a baby’. However, when I had first got there this evening he wouldn’t stop smiling…ear to ear…it was awesome! I think I was just so infatuated with it I forgot to take any pictures. I’ll post some more soon though. (this picture is one I stole from Leah’s phone….it was taken earlier today)

He just looks so comfortable. Leah said that they weaned his fentanyl again today, weaned his VapoTherm some more, and increased his feedings. These are very encouraging steps in the right direction. Unfortunately, we are conditioned to watch for the next bad thing to happen (that’s not something I’m proud of, but it’s true). But I’ll conclude with this passage sent to us from a good friend.

2 Corinthians 4:17-18
For our present troubles are small and won’t last very long. Yet they produce for us a glory that vastly outweighs them and will last forever! So we don’t look at the troubles we can see now; rather, we fix our gaze on things that cannot be seen. For the things we see now will soon be gone, but the things we cannot see will last forever.

— with Leah ‘Whiteley’ Rupp at st Vincents womens hospital.

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3 thoughts on “March 14, 2013

  1. Sharon Crigger-Stokan says:

    It doesn’t get any better than this…Beckett is ADORABLE!! Cute…cute…cute…! You can see in his eyes he is one special little boy. Praising God and thanking HIM for being with Beckett and you and Leah.

  2. Doris Wallace says:

    Dear Beckett, Since you are determined to be so handsome, adorable, squeezable, you have already stolen my heart! You are such a little fighter…sort of a little Ali…your dad can explain who Ali is. Only one of the best fighters ever…next to you!

    Enjoy the touch of Jesus’ hand as He holds you close every day. OK?

    Your neighbors, Doris and Debi

  3. Whitney says:

    Geesh that is one beautiful kid. LOVE the picture. Praying everyday for your little man. As my daughter Lucy said, “Doctors can make Beckett’s heart better but Jesus can make it even more better.” Amen to that.

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