Heart of Beckett

Beckett was quite irritable off-n-on throughout the day. They decided to give him another “rescue dose” of morphine this morning. So heading into the afternoon I went down to the hospital lobby as Leah hung out in Beckett’s room with her family. She always loves their company so much, it just brings a smile to my face when I think about how happy her family makes her. I came back up to Beckett’s room as dinner time(ish) was approaching, and walked into the room with Beckett crying. Leah looked at me and said, “He just started doing this…I promise”. Sooo, for the next 1/2 hour we worked diligently on calming him down. He’d settle down for a bit but then to just burst into a hysterical cry. The docs and nurses are fairly convinced its “just” withdrawals. Though that is somewhat comforting, it’s also quite heart-breaking. I hate to see my son cry. He’s already been through enough, ya know? I just want him to be happy and experience a life outside of this silly little hospital room.

So here we wait, just sitting in his room with the lights off. His nurse, Kathy, just informed us that she needed to give him another “rescue dose” of morphine. So, he’s actually knocked out cold right now. These days are getting longer and longer. We remember saying things like, “We’ll be BACK to the hospital as early as possibly April and as late as July for his 2nd surgery.” Yup, it’s now March 16th…and we are still here…and AT LEAST a couple weeks away from talking about the “H” word again (“Home”…..we are cautious to throw that word around very much anymore).

Whelp, that’s about it. They are also increasing how frequent (not the dosage) they administer his methadone to help get him through this phase of withdrawal.

Thanks everyone for hanging in there. Even though we are clearly “still here”, we know that there are soooo many of you guys “still there” as much “by our side” as you can be. And for that, we are so thankful. I mean, we’ve only had Beckett’s website live for about a month and a half now, and we are nearly up to 35,000 hits already. That’s crazy! So again, thank you everyone!

#GoBeckett!