As we were leaving the hospital tonight, I abruptly muttered “my how things are so different tonight than 24 hours ago”.
I must first explain that nearly my entire day consisted of sitting in the hospital lobby squinting at a laptop while little children mistakenly confused me for some sort of large play-toy. So, most of this update is what I have been relayed via Leah throughout my day.
The day was fairly uneventful (you’re welcome, for setting your mind at ease this early in the update). Beckett’s VapoTherm got turned down from 8 liters to 7 because we were being told that the X-Ray was showing his lungs to be inflated a little too much (and I don’t doubt it, having 8 liters of air blown up your nose looks/sounds like relentless-compressed-air being maliciously blown at your face for an unfortunately long amount of time……poor little guy).
Here is where the update gets a little interesting. Beckett has pretty much ALWAYS had (at the very least) a small plural effusion and mild to severe atelectasis. In fact, the X-Rays yesterday were showing a large amount of atelectasis (which is one of the many reasons he was struggling so much). The X-Ray today was showing NO plural effusion and NO atelectasis! I’m not gonna lie, part of me still finds this hard-to-believe (Mark 9:24), but a much larger part of me is genuinely blown away!
As a result, Leah pretty much held Beckett on-and-off nearly all day. She would send me pictures of him just sleeping, resting, lookin’ around, gettin’ his fingernails filed (yeah, they were gettin’ crazy long and we aren’t allowed to clip them), and all kinds of “normal” things. Beckett handled it so well. One of the things we kept getting told is how little “reserve” he has for anything. You go to change his diaper, and just by lifting his legs and compressing his ribcage against his heart, he would desat. That was not the case today, it was yesterday, but not today…..amazing!
We couldn’t be more thrilled with how restful and encouraging today was. What an answer to prayer. Hang tight, I hope for many more great announcements like this to come.
“Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the Lord your God will be with you wherever you go.”