Well, from a respiratory standpoint along with his cardiac “issues”, he’s actually still looking pretty good. It’s all kinda relative though. I mean, though he’s back down to room air (21%), he’s still on 6 liters of support from his VapoTherm. And though from a cardiac standpoint he’s “looking good” as well, he’s still on heart medicine and has an enlarged heart. BUT, he really is having better days as-far-as everything he’s been battling the past few weeks.
With that being said, he has been withdrawing pretty bad off-n-on all day today. He pretty much had to be held all day, which afforded a lot of opportunity to his grandparents today! 😉
His bilirubin is still up. In fact, it’s even a little bit higher today from yesterday. Leah said that he looks like an Oompah Loompah (however you spell that). I think he just has a nice tan. But on a more serious note, he is being treated for that…we’ve just been informed that since it’s “direct bili”, it takes a few days to see the results from the medicine. But rest assured, he’s definitely being treated for it (along with many other things).
We have to be reminded that even though he’s been “high as a kite” pretty much all day from the rescue doses of morphine, these were the “struggles” we were longing for when we were over in the PICU back in January. We are so thankful for yet another day as we take on this journey right alongside of Beckett one day at a time.
Oh, also…he’s lost a little weight. Not much, but some. So that’s something else to be praying for as well.