April 6, 2013

UPDATE (4/6/13)

Well, from a respiratory standpoint along with his cardiac “issues”, he’s actually still looking pretty good. It’s all kinda relative though. I mean, though he’s back down to room air (21%), he’s still on 6 liters of support from his VapoTherm. And though from a cardiac standpoint he’s “looking good” as well, he’s still on heart medicine and has an enlarged heart. BUT, he really is having better days as-far-as everything he’s been battling the past few weeks.

With that being said, he has been withdrawing pretty bad off-n-on all day today. He pretty much had to be held all day, which afforded a lot of opportunity to his grandparents today! 😉

His bilirubin is still up. In fact, it’s even a little bit higher today from yesterday. Leah said that he looks like an Oompah Loompah (however you spell that). I think he just has a nice tan. But on a more serious note, he is being treated for that…we’ve just been informed that since it’s “direct bili”, it takes a few days to see the results from the medicine. But rest assured, he’s definitely being treated for it (along with many other things).

We have to be reminded that even though he’s been “high as a kite” pretty much all day from the rescue doses of morphine, these were the “struggles” we were longing for when we were over in the PICU back in January. We are so thankful for yet another day as we take on this journey right alongside of Beckett one day at a time.

Oh, also…he’s lost a little weight. Not much, but some. So that’s something else to be praying for as well.

Thanks everyone! #GoBeckett! #ODAAT

— with Leah ‘Whiteley’ Rupp at St. Vincent Women’s Hospital.

3 thoughts on “April 6, 2013

  1. Roni Lynn Lovelace says:

    Having done all to Stand , Standing ,Trusting ,Believing GOD .. The Author and the Finisher of Our Faith, for HE is Faithful .. I am in Gaylord , MI. And go to Gaylord E-Free , as I’m going to sleep every night I check in on Beckett, you Johnathon & Leah … We are Christian Soldiers , Standing on GOD’S Promises & Rejoicing.. As Our Heavenly Father Loves Beckett , With an Everlasting Love.. I’m not telling you anything you don’t already know, but sharing with you the the Spirit of Grace is Keeping Our Hearts Alive .. And Standing with You’s on Behalf of Beckett.. Appreciate all the info, then it’s easier to Pray Specifically … Love from This Mama , that has had 5 Children .. All raised & Believing GOD with you all !! Sending Prayers & Hugs !! Ephesians 3:20 is the Scripture I’m Believing with you all on … Glory to GOD!!

  2. Sharon Grandstaff says:

    Believing with you in God’s love and grace. His plan for Beckett, you and Leah is perfect even when it’s not what we desire most. Our job is to just keep believing in His perfect timing. Loving all three of you and continuing ongoing prayer for Beckett’s complete healing. God bless.

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