Heart of Beckett

UPDATE (4/27/13)

Today has been a better day. It began with a great conversation with Cardiology. By “great”, I mean that we felt like we were able to clearly communicate a few of our concerns and felt as if we “had a voice” and were “heard”. Our ideas seemed to be acknowledged and carry some credibility as viable options that have yet to be considered.

Beckett continued to whimper here-n-there throughout the day, but the general consensus is that he’s withdrawing off his pain meds by continuing to build up more of a tolerance to them every day/week/month he is still on them. We plan to have a conversation with the well respected pharmacist here at Riley on Monday. He’s apparently the guru around here to figuring out healthy and effective wean schedules for babies. Other than that, he actually slept a while in Mommy’s arms and had a fairly calm day.

So, we just hang tight and will hopefully just enjoy a “normal” day tomorrow of enjoying Beckett and helping him through any withdrawal symptoms. This has been an issue we’ve seemed to constantly deal with at St. V’s (and even at Peyton Manning), and its a relentless plague until we can officially get all these pain meds out of his system once-and-for-all. This will take a while, so we continue to learn patience and trust God’s timing through it all (easier said/typed than done).

Please continue to pray for wisdom from the medical staff, patience on our part, clear communication, recent issues of house repairs, finishing my semester strong, Leah’s commute to work, and certainly Beckett’s complete healing! One day at a time (#ODAAT). #GoBeckett!

(Oh, and it’s Beckett’s 4 month old birthday tomorrow!! Yay!)

— with Leah ‘Whiteley’ Rupp at Riley Hospital for Children at IU Health.