Heart of Beckett

UPDATE (6/7/13)

As you may have noticed (in the photos I posted earlier today), I played a little guitar for Beckett again today. I say “again”, because I use to play for him a long time ago back when he was still on Ecmo (back in January), and shortly after. I wasn’t ever sure if I was allowed to do it when we got moved to St. V’s Women’s Hospital from Peyton Manning, or even here at Riley…but I was recently told that if I play for him it would be really good for him developmentally to hear. Before, when I use to play for him, he wasn’t conscious, so I was never really sure if he could even hear me. I liked to imagine that he could, but I guess I’ll never really know. Anyways, it was fun to play for him. I know I posted a picture of him yawning while I played, but truly, it was really fun to watch him pan back-n-forth from my strumming hand to my other hand. He just watched intently and kinda kicked along. It was a closed session though, no nurses allowed. 😉 I really wouldn’t have cared who listened, but we had to shut the door because we are next to a room filled with a bunch of preemies, and we wanted to be sensitive to that (and, our room was packed out as well…it’s quite small).

Also…………WE ARE OUT OF ISOLATION! No longer do we have to wear the yellow garbs and purple gloves. Both his nasal swabs tested negative for MRSA (as we always wondered). This is sooo great! We can now (after washing our hands) just walk straight into his room and love on him, kiss on him, hug him (kinda)…it’s great!

And as you may be wondering (if you read yesterday’s post), Beckett is doing much better today. He has had no more PACs or SVTs. We spoke with Cardiology this morning and they did not seem overly concerned. Sure, the events of yesterday evening were not ideal, but being that it was so “short” AND he pulled out of it on his own without the additional assistance of medicine, they are just going to be “watching him closely.”

More good news:
The results of the UltraSound (checking on the clot in his leg) came back showing NO MORE CLOT! That’s fantastic news! Soooo…we are now sitting in Beckett’s room waiting to hear when Beckett will be heading down for his MRI (to check on the clot in his brain). I always called it an MRV in my previous posts, but they are calling it a MRI with Contrast here. It may be the same thing, it may be different….either way, this will show us if he has a clot or not. This would be fantastic to know if it’s gone!! Please pray for that to be the case.

Lastly, please pray for one more thing (among the many many other issues and requests). We think Beckett might be having Night Terrors. I know that kinda sounds “intense” or “exaggerated”…but our doctor actually did a little research today, and it appears that this may be the case. It’s not a huge deal, it just breaks our heart that he has been waking up often in a bloodcurdling cry.

That’s about it. We’re doing ok. No, we’re doing good! We are still very pleased with his progress, even though we have some minor hiccups along the way. One step at a time. To God be the Glory!

#GoBeckett
#ODAAT

— with Leah ‘Whiteley’ Rupp at Riley Hospital for Children at IU Health.