June 8, 2013

UPDATE (6/8/13)

Whelp, Leah and I came in this morning a little “early” so that she could spend some time with Beckett before she had to make the trip up to Fort Wayne for work this weekend. Again, she is now on a set schedule for Saturday and Sundays from 1:00pm-1:00am. Though this is not “ideal”, we are thankful for her job…and Leah truly maintains a great attitude about it all. She’s amazing!

It was, however, extra “touching” this morning when Leah tried to say “see-you-soon” to Beckett. He would just hold on to her finger, pull her in, and even when she would try to walk out, he’d reach his hand towards her. And if you’ve ever seen a picture of Beckett, you’d know just how engaging his eyes can be….well, lets just say that it broke her heart.

We have had a good day today, however. He is still refluxing….so please pray for that. It really scares him, and us….it’s not fun and definitely gets him really riled up.

We are still waiting on the results for the MRI. We were told that we should hear back from them today….but I guess that never happened. We are optimistic that the clot is gone, but I guess we’ll wait patiently until we hear the “final word.”

Also, we just heard that the cardiac cath is unofficially official for June 20th…the day after the move into the new facility. I don’t think it’s actually official yet because we are still waiting to hear back if there are any slots available that day for the cath, but again…we think that it will most likely happen that day. Either way, it’s nice to start hearing dates for things…it really helps us feel like we are still moving forward.

We have much to be thankful for. Beckett is truly a miracle baby. Leah reminded me a few days ago that back in January when Beckett was on the Ecmo machine, his heart was literally not beating for like, over a day. In fact, his heart only began to beat a little bit here-n-there a day or two afterwards. The Ecmo machine would do the “beating” or “pumping” for him, to allow his heart to rest. That’s unbelievable. I kinda forgot that detail. My son’s heart stopped working for an “extended” period of time after his cardiac arrest! Wow! That, in addition to many MANY other things is just so amazing to me. Yes, modern medicine was monumental in his recovery, but I believe with all that I am that God was not only working in and through all of that, there were a slew of miracles all along his journey. What a blessing it is to be a part of this journey with my son. The lives he’s touched, the thousands of people he’s inspired……and he’s only 5 months old. We simply keep inviting Jesus to continue to work in and through our son’s life. May people hear the true gospel message through this journey, however that may unfold. Through all the good and the bad…to God be ALL the glory!

Isaiah 26:3-4
You keep him in perfect peace whose mind is stayed on you, because he trusts in you. Trust in the Lord forever, for the Lord God is an everlasting rock.


— with Leah ‘Whiteley’ Rupp at Riley Hospital for Children at IU Health.

2 thoughts on “June 8, 2013

  1. Praising God for what he had done and is continuing to do in Beckett’s life. Praying fervently for you all daily and continually for a miracle.

  2. doriew says:

    Glad for the good days…keep on keeping on! You’re headed in the right direction!

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