Heart of Beckett

UPDATE (6/9/13)

Ok…..sooo, another good day. Perspective is key. His breathing has gotten a little more distressed, so they actually turned the flow of his VapoTherm back up to 3 liters. Though this is a “step backwards”, it apparently isn’t the worst thing ever. They know he can handle 2 liters, but they are just trying to give him as much support as possible these next few weeks (heading into the Cardiac Cath). They did do another X-Ray today (because of his excessive breathing), and they actually said that it appears to be the clearest and best looking X-Ray thus far.

Additionally, there were a few other little things addressed today. One, his eyes have been getting a little red and bloodshot. This has been the case for a week or so, but he is now back on some eye drops that should help. The only bummer is….he hates ’em! Man, does he get mad! But I think his eyes are already starting to look a little better.

Another issue is his reflux. Our nurse today told Cardiology about it, and Cardiology said that this is the first they’ve heard of it. That was a bit of a surprise. She (Cardiology) said that she isn’t a big fan of it and would like to figure out a solution soon. Since reflux isn’t necessarily their specialty, they will now depend on the expertise of the Neonatologists. However, the Neos aren’t nearly as concerned about it. This then, will have to be a joint effort to resolve the issue. Tomorrow, the HEAD Neonatologist of the entire NICU will be working, and they said that they are going to ask him for any creative/experienced solutions. I hope this gets resolved soon!!

We are still waiting on the MRI results. I am now being told that we will most likely find out sometime tomorrow. Though it isn’t necessarily critical for US to find out the results as-soon-as-possible….we just want to know….ya know? 😉 It’ll just be one more thing “off the list” to know that he no longer has any blood clots.

He had some “Bumbo Time” today! A Bumbo (for all of you who were just like me and had no clue what a Bumbo was) is a foam chair thing that he sits upright in. It was cool to see him use muscles he hasn’t really used before to do things like hold his torso steady and his neck still. He did such a good job for the first time…and it was certainly fun to try. I’m so proud if his slow/consistent progress.

Lastly, we were able to FaceTime again with Leah today. She was at work, but had a moment to run away for a second to see her son. It was cute….he definitely looked right at my screen (at Leah) and seemed a little confused, but definitely intrigued.

One last thing. He has graduated yet again from diaper school. He is now in size 3 diapers. For some of you, this hardly means anything. And really, for me, it simply means: Wow, he’s getting bigger!! 🙂

Love you all….sooo much. I can’t wait to someday go on a “Beckett Tour” and just show him off to all of you in various towns, events and visitations. Go, Beckett, Go!

#ODAAT

— with Leah ‘Whiteley’ Rupp at Riley Hospital for Children at IU Health.