June 26, 2013

UPDATE (6/26/13)

We had a great opportunity this morning to ask a bunch of questions to one of the cardiologists. It was very helpful and informative. We are clearly still nervous about heading into surgery, but the cardiologist affirmed that he would be concerned about us if we weren’t at least a little nervous. It was actually quite touching, as we talked through the surgery and our questions with the cardiologist, at one point he started tearing up. These are the outward signs that many perceive to portray “weakness” (in which I clearly disagree, because), it was extremely comforting, and just a glimpse of how much some of the people here at Riley care about us and our son.

I hope you all got the chance to see the picture I posted of Beckett’s mohawk. We think it was sooo cute. Apparently he still had it this morning when the day-shift nurse arrived, and she just loved it as well!

If you remember months and months ago us posting about a family we met during our stay at Peyton Manning, well, they need your prayers once again. His name is Henry, he’s 4 years old and has leukemia. He’s had a bumpy road (like Beckett), but he’s certainly a fighter (like Beckett ;-)). He and Beckett actually came off of Ecmo the same day back in January. He is actually (currently) cancer free, and has even been discharged to home a few days ago. Unfortunately they have found themselves back in the emergency room once again and are requesting prayers…once again. I don’t know very many details, but he’s apparently come down with a temp and is having a few issues in/around his throat (he still has a trach…which is/was scheduled to possibly come out soon). Sooo, please continue/begin lifting this family up in your prayers. They are an awesome family, and definitely need the prayers right now!

Lastly, I’m posting this update right now because we gotta “call it a night” early. I have a surprise planned for Leah (which, she hates surprises), and we gotta get going. πŸ˜‰ I’ll possibly post more either later tonight and/or sometime tomorrow as to what that this surprise is. For now I’m just trying to dodge her million questions as to what we are doing…so “wish me luck” to get her out of the hospital with minimum “kicking & screaming”! πŸ˜‰ I may have some “battle scars” to show by the end of this evening. Ha.

Goodnight y’all……and thank you for your amazing support!

#GoBeckett
#ODAAT

β€” with Leah ‘Whiteley’ Rupp at Riley Hospital for Children at IU Health.

2 thoughts on “June 26, 2013

  1. Sandy says:

    Nice hair Beckett!! Too cute😘😘😘

    Sent from my iPhone

  2. Wonderful that you were able to get some questions answered today. And that your doctor allowed himself to show how much he cares. I remember a couple of doctors who cried with us and how deeply that touched us. Still brings tears to my eyes 25 years later. Hope you and Leah have fun tonight. Praying…praying…for Beckett and the little 4yo boy.

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