June 27, 2013

UPDATE (6/27/13)

Whelp, last night was a success! You may have seen (from the picture I posted), I surprised Leah with a Carriage Ride in downtown Indy last night. She was awfully resistant at first (to the “surprise”, not the actual Carriage Ride), but eventually realized that I wasn’t gonna take no for an answer. I’ve been wanting to do something special for Leah for a while now, but I don’t share this to show just how awesome of a husband I am. In fact, the Carriage Ride wasn’t even my idea. I was brainstorming the other weekend with one of Beckett’s nurses while Leah was at work of a potential idea for something I could do for/with Leah before Beckett’s surgery. I know Leah well enough that she would not leave with me for quite some time after Beckett’s surgery for something like a Carriage Ride. Sooo, it had to happen now….and I think we are both glad we did it. Someone (among the many of you extremely generous friends) sent us $100 and encouraged us to use it however we pleased. Well, I chose to use it for a night out with my wife on a lil Carriage Ride, some South Bend Chocolate Factory treats, and a low-key movie night back at the house we’ve been staying at. You all are so very generous and thoughtful, being so intentional in even looking out for Leah and I along this journey…we will truly never be able to adequately express our gratitude.

Beckett has had another good day today. He did start doing the P.A.C.s thing with his heart again. But we are beginning to learn that the Neos and Cardiologists don’t seem overly concerned…..so we are trying to do the same.

We had some great visitors once again today. Some friends of Taylor University, and even a couple from our NICU days back at St. Vincent’s. As you’ve heard me say it before, we do love visitors, and Beckett does as well. For the most part, he behaved really well. He had a few “meltdowns” here-n-there, but he also flashed a few great smiles. He’s such a little charmer!

Leah actually ran out today and got her hair cut, did a little shopping, and just spent some good time with her Mom and sister. While shopping, she was specifically looking for a new outfit for Beckett. We’ve decided to have a mini-dedication service for him on July 1st, where we simply display our gratitude for Beckett and his life, commit to raising him to know and love God, and outwardly express our willingness to place him back in our God’s sovereign hands. My brother-in-law is who married Leah and I, and so fittingly, we’ve decided to ask if he’d do this with/for us. We’ve even gotten the hospital to allow us to “fill” Beckett’s room with family for the brief moment…..and we are just very excited about this opportunity! One thing I must make clear (and not that anyone may be thinking this), but I would assume if you’ve been following our blog for a while now that you have observed a authentic commitment to our faith. This has never been “hocus-pocus” to us. This is what we know, have experienced and are inspired to share. Soooo, to clarify, this dedication is not being done the day before Beckett’s surgery as a symbolic measure that may hopefully save his life. We are choosing this day as a day to commemorate Beckett’s amazing life and journey, and verbally commit my son’s life and upbringing to the Lord. God is in control, we are not. May God always be glorified in our family, especially through the life of our amazing son, Beckett.


— with Leah ‘Whiteley’ Rupp at Riley Hospital for Children at IU Health.

2 thoughts on “June 27, 2013

  1. child of God says:

    How romantic! I am glad that you are keeping your marriage in a place of importance it is vital to the health of Beckett. 🙂
    Glad to hear it was another good day. Keeping you all in my prayers.


  2. Wonderful that you have chosen to commemorate Beckett’s life with a dedication service. He certainly is a blessing from God. Thanking God for Beckett’s life and your family…praising God for what He has done, is doing, and going to do in Beckett’s life…and bathing the next few days especially in prayer for Beckett’s surgery

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