Happy 4th of July everyone! Yet another holiday we are privileged to spend with our son celebrating our independence and those who fought/fight for our freedom.
We’ve been told that the fireworks here in Indy are pretty awesome. Sooo, the current plan (if Beckett allows) is to possibly escape for a few minutes to the roof of the parking garage here, in which we were told has a surprisingly good view of the fireworks. I’m looking forward to it as a time of reflection and celebration of life and freedom.
Sooo, here’s some fun news…Beckett opened his eyes! The last few nights we were able to stay in a room here at the hospital. Late last night, Leah went back up to Beckett’s room an returned with the news that he opened his eyes! That was exciting news. Then he did it again today. Then again. And again! It’s actually quite funny. I warned the PICU Physician that he has a terribly high tolerance to pain meds, and they are learning quickly that we were not exaggerating. One nurse wrote on Beckett’s board under a section titled “What you should know about me” — “I sure like my methadone.” Funny, but sad. I hate this phrase, but it’s sooo applicable…these pain meds truly are a “necessary evil”. Anyways, they are working on continuing to tweak his meds, and some meds have actually already been weaned off! That’s fantastic!
We were, however, informed that they almost reintubated Beckett last night. I guess he desatted as low as the 30s, but they decided to try to put him on a Bipap machine at first, then they switched him to a Cpap machine, and by the time we were in his room this morning he was only on the VapoTherm (but at a flow of 20!).
He’s doing relatively well, actually…but we still have a ways to go. I cannot believe its been more than 48 hours since his surgery! I am so proud of him and his progress. He’s such a strong boy. Though we continue to “hold our breath” here-n-there, we are beginning to receive a glimmer of hope that Beckett is trending the right direction. One step at a time.