July 3, 2013

UPDATE (7/3/13)

Sooo, as mentioned this morning…after a few “tweaks” last night, Beckett had an ok night. They decided to push him a little bit this afternoon, and, long-story-short, they EXTUBATED him this afternoon. Wow! Exciting, but very nerve-racking.

Well, as the evening progressed, Beckett began to struggle keeping his saturations where we need them. His blood gasses looked fine, but he just couldn’t seem to maintain his sats where they need to be. Sooo, they decided to do an X-Ray….and sure enough, his lungs were a little “wet” and on the verge of atelectasis. Sooo, the diarrhetics are on “full-throttle”. They will try to get the fluid off his lungs and hope this is what he needs to break through and bring his sats back to an acceptable level. Otherwise………we are talking about REintubating (please pray that we do not need to do that). However, they have tried to make it clear that it is NOT uncommon to have to REintubate after a first attempt on Extubation from this particular Glenn procedure. Sooo, we are trying to simply take deep breaths along with the medical staff here and take it an hour at a time.

Also, I’m working on a little project right now. I want to post for you all (if you are interested) a video of Beckett’s Dedication. I think I’m almost done with it…but I keep working on it a few minutes at a time….soooo, it may take me some time…but I’ll try to post something “soon”. Again, if y’all would appreciate to see it.

Thanks again everyone! We had over 3,200 hits on the website yesterday. The support is astounding! But as always, please hang in there with us. One day at a time.

#GoBeckett
#ODAAT

— with Leah ‘Whiteley’ Rupp at Riley Hospital for Children at IU Health.