Heart of Beckett

UPDATE (7/9/13)

Beckett is doing so well. This is such an overly used phrase, but completely applicable in this situation, “It’s a miracle!” It’s so exciting to see him excel and successfully achieve goals and bench marks.

I was actually not in Indy for most of the day today, but Leah mentioned that earlier this morning Beckett was extremely happy, “flirtatious”, and cooperative. I guess PT stopped in to “assess” him, but after noticing how good he was doing, they decided to try to do a few things (stretches, sitting up, etc) with him, in which I’m being told he tolerated very well.

You may recall me stating that they took out his PICC line the other day. That was definitely a good thing, particularly because of how old it was getting. However, they decided they want him to have it again, but this time in his other arm. Consequently, they were able to then pull his other lines (a central line, and an arterial line). I just noticed then, earlier this evening, that new PICC line is not hooked up to anything; apparently it doesn’t need fluids running through it this time (Leah is telling me that it might be “Hep Locked”…whatever that means). So, the only things directly “hooked” to him are the pulse ox and electrodes as-well-as his nasal cannula. I can almost pick him up and just walk around the room….that day will be amazing!!

As I was typing this update, Beckett’s surgeon, Dr. Brown, just walked in the room. Needless-to-say, I stopped what I was doing and felt obliged to stand. He was only in our room for a minute or two, but said Beckett appears to be cooperating with the program. He said that he is looking much better, and that he is very pleased. He then said, “Very good” and walked out of the room. I looked at Leah, and you could see a huge sigh of relief rest upon her. It was kind of like, ok, we’ve observed that he is looking pretty good to us, but to hear it from our surgeon is certainly a huge boost of confidence.

You all have been too kind about the dedication video. I keep getting messages and posts thanking us for sharing that moment with you. And though I appreciate your appreciation, we feel as if we should be thanking each of you. I know I conclude nearly each of my updates in this way, but I cannot help but thank you all over and over for your prayers and support. We aren’t done yet, but we are certainly sniffing fresh air and are excited for the immediate days to come! #GoBeckett!!! ……#ODAAT

— with Leah ‘Whiteley’ Rupp at Riley Hospital for Children at IU Health.