Heart of Beckett

UPDATE (7/29/13)

Not a great night last night, but not horrible. I’ve realized that I’ve left out an important detail as to why Beckett might be “struggling” so much with what seems to be a change of scenery; we’ve begun weaning Beckett’s methadone once again ever since we came home from the hospital. Yes, the new noise (or lack-there-of), sensing our “fear” when he’s hysterically crying, or any other current new element he is adjusting to…may be a contributing factor to his fussy behavior, but more relevant may be the fact that he is most likely withdrawing from his methadone. As typical consolable tactics wear off, a common culprit to that behavior is almost always withdraw. So, this may be a battle we just have to wrestle with for these next few months until we can get him completely off some of these meds.

We had another visit from an IU nurse today. She only had in her notes that Beckett had respiratory issues. So, after a few probing questions, I realized that she may need to know about Beckett’s heart surgeries and a brief synopsis of our past 7 months. She was blown away. Now that we are completely on the same page, she certainly has an even better grasp of what she’ll be walking into when she visits. I think we’ll have nurse-visits a couple times a week.

We continue to be provided with delicious meals, which is such a blessing. I can’t tell you how liberating it is to have one less thing to worry about. We were also given an old/new fridge-freezer combo a few months ago, so if you are interested in just dropping off something to freeze for a meal in the future, we definitely won’t turn away any home cooked meals.

One day at a time. Like I said yesterday, we are blessed and stressed. But God is good, and we are truly thankful that we even have him HOME to be “stressed about”.

#GoBeckett
#ODAAT