I’m back. I fought through traffic jams and rush-hour this morning until I finally arrived at the hospital. Two days away felt like an eternity this time. The first thing I did was cuddle with him while awkwardly leaning over the side of his bed and putting my head next to his. What warms the heart is he will equally lean into my awkward embrace. Shortly after Leah took a nap while I held Beckett for a couple hours and we slowly dozed off for a bit (I literally live for those moments…they are very precious to me).
He is still a little “grumpy” today, but there were playful moments. He has a hard time understanding some of what he can and can’t do. Towards the end of the evening we were table to take him on a wagon ride around the unit until we had a pit-stop in the toy room. He was sitting up playing trains on a table until he eventually seemed a little worn out. We called it “quits” and brought him back to his room (which was a good call).
They are continuing some pain meds to get him over the “movement pains,” which we only hope we can stay ahead of (if that makes sense). It’s just not desirable to get “behind” on the pain tolerance and have to try and “catch him up.” It’s a balance, but that’s where we skirt the line of advocating for him and trusting the professionals.
The nurse called in some Physical Therapy and maybe even Speech Therapy (for his oral feeds…don’t worry Kendra, you’re not being replaced) so he won’t fall too far behind while he’s hospitalized.
Other than that, we are taking deep breathes and trying to enjoy each day and each moment…..I encourage you all to do the same. 😏 Thanks for the constant encouragement, I’m confident it means more than you’ll ever know.