October 12, 2016

UPDATE (10/12/16)
I’m back. I fought through traffic jams and rush-hour this morning until I finally arrived at the hospital. Two days away felt like an eternity this time. The first thing I did was cuddle with him while awkwardly leaning over the side of his bed and putting my head next to his. What warms the heart is he will equally lean into my awkward embrace. Shortly after Leah took a nap while I held Beckett for a couple hours and we slowly dozed off for a bit (I literally live for those moments…they are very precious to me).
He is still a little “grumpy” today, but there were playful moments. He has a hard time understanding some of what he can and can’t do. Towards the end of the evening we were table to take him on a wagon ride around the unit until we had a pit-stop in the toy room. He was sitting up playing trains on a table until he eventually seemed a little worn out. We called it “quits” and brought him back to his room (which was a good call).
They are continuing some pain meds to get him over the “movement pains,” which we only hope we can stay ahead of (if that makes sense). It’s just not desirable to get “behind” on the pain tolerance and have to try and “catch him up.” It’s a balance, but that’s where we skirt the line of advocating for him and trusting the professionals.
The nurse called in some Physical Therapy and maybe even Speech Therapy (for his oral feeds…don’t worry Kendra, you’re not being replaced) so he won’t fall too far behind while he’s hospitalized.
Other than that, we are taking deep breathes and trying to enjoy each day and each moment…..I encourage you all to do the same. 😏 Thanks for the constant encouragement, I’m confident it means more than you’ll ever know.


5 thoughts on “October 12, 2016

  1. Jerriene Woodrow says:

    Thank you for the update, seems as if he’s doing very well. I’m have so much to tell our prayer warriors.

  2. Sharon Crigger-Stokan says:

    What a great way to end the day by reading this encouraging post! Praying fervently and often during each day for your little super hero. Glad you are all back together. Thank you Lord, for what you are doing in little Beckett’s body!

  3. Bernadette Giacona says:

    I can not imagine what you are experiencing, seeing that your child is your world. I have experienced the hospital situation as well as the pain meds. And as they say you can’t heal when your in extreme pain. Hang in there you are GREAT advocates and are doing your best to make the right decisions. Also know…. although you don’t need to be told…. you have been through this often, THERE IS NO WRONG QUESTION AND YOU CAN QUESTION EVERY MOVE…. because you are the only voice he has… Bless all of you and I will as always continue to pray.

    • Patsy Bryant says:

      Greetings, Rupp family!! Hi there, little Buddy! Big hugs are coming your way from your preschool buddies and teachers! Just yesterday, one of your special friends saw your picture in the hallway and said, “There’s Beckett!” EVERYONE is missing you lots and lots!! Keep on getting better! We are SO glad that you got to take a wagon ride down the corridor,…such fun! We’ll see you very soon, little Man!

      ~The Learning Tree Preschool

  4. Mandy Cassidy says:

    I am so thankful for these updates! He is on our minds at Eastbrook. The preschoolers ask about him. Tell him we miss his hugs!

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