Still kinda cranky today, but the day has ended really well. We try to keep him active (it’s good for him), but need to find a balance.
We played again in the toy room as-well-as some fun mat-time on the floor. We finally started getting some giggles again and spunkiness (is that a word?). We even tried to help him stand, but his legs were like spaghetti noodles (or, as Leah likes to explain it, what The Little Mermaid looked like when she was first learning to walk).
His sats have gotten better, but we still need to get him completely off his oxygen support. One of the nurse practitioners caught us off-guard and casually eluded to Beckett possibly being discharged as early as Sunday! 😳 Leah and I looked at each other and laughed in our heads together. We genuinely appreciated her optimism, but we are definitely more than 2 days out from being discharged. Don’t hear me wrong, I hope we are mistaken, but I think we’ll finally go home some day next week. In a nutshell, he needs to eventually start walking and get completely off his oxygen. As soon as he begins to play along with that game plan that’s when we’ll finally go home.
As Leah likes to remind me, “he just had open heart surgery a week ago.” Yes, yes…fair enough. I find that my patience teeters on reality and a passionate desire to just go home. When I finally take a deep breath I find perspective on being present and loving my wife and son the best I can today…remembering that none of us are guaranteed tomorrow and should fully embrace what today has afforded us. Surely we have all had days where an optimistic perspective is just too….well, optimistic. But certainly in my “daily struggles” I can easily find the blessing. To have a son nearly four years later to even console is a gift…..a miracle really! Anyways, I digress.
As always, thank you for the support and encouragement….we’re so so close! Oh, and thank you to all our visitors, we genuinely love it!
Another encouraging post..knowing there is a way to go yet, but so thankful for how Beckett is doing ‘crankiness’ and all. 🙂 I had just finished a time of prayer for you all and was sharing with my husband the latest posts and how your little super hero is doing, all he has been through in his few miracle years – and all I could think of were the words to the doxology – ‘Praise God from whom all blessings flow…’ And Beckett certainly is a blessing! Prayers continuing…
Sharon Crigger-Stokan, you said it all for our prayer partner’s in Michigan. Thank you.
Beckett and his Mom and Dad have been in our hearts and minds for over 4 yrs. now.
We went home at 10 days post op. We really expected to be in the hospital longer too 😉