Heart of Beckett

UPDATE (10/20/16)
Drum-Roll please……we’re home! Can you believe it? I hardly can, and in less than 2 weeks! I’ve literally dreamed of this day many times these past few years, and now we’re here. I joked when looking at Leah earlier and said, “…now what do we do?” lol I guess we just live life, right?! Ha.
Well, in all seriousness, the journey isn’t over just yet. We are on a new med regiment, we have to go have Beckett’s blood drawn twice a week to check some of his levels for the next 6 months, we will still have weekly speech therapy to continue to help him learn how to eat, we still have regular pediatric appointments, GI appointments, cardiology appointments, and appointments with our surgeon. With that said, we are obviously thrilled to be on this side of things. It’s really quite surreal.
Feel free to continue to follow Beckett’s journey on his website, or in our casual social posts of Rupp life. I’m sure we will be posting less again, but I must reemphasize how thankful we were/are for your encouragement these past few years. If you are even reading this, I’m referring to you.
And thank you God for your constant provision and patience as we navigated this unfamiliar territory. We didn’t always do it “right” but we found our strength in You.
My mom shared this verse with me earlier today, and it is quite fitting to bookend this chapter of our lives:

Psalm 63:7&8

Because you are my helper, I sing for joy in the shadow of your wings. I cling to you; your strong right hand holds (Beckett) securely.
Oh, lastly, here are the instructions for the “Take Them A Meal” if you are interested:

If you would like to sign up, you can access the meal schedule by visiting http://www.TakeThemAMeal.com and locating the schedule by recipient last name (Rupp) and password (3174739107). Thanks again!
#GoBeckett

#ODAAT 

UPDATE (10/19/16)
Whelp, if you saw the pic from earlier today, you learned that there is some serious talk about going home very soon. In fact, someone from our surgeon’s team came in and asked if we were interested in going home today. 😳 However, he then seemed to imply that he’d prefer waiting at least one more day, and to be honest, we were on the same page. You see, Beckett’s “numbers” need to be dialed in just a little more. He is trending in the right direction, but we would like from them to check his labs one more time tomorrow morning before we feel 100% comfortable taking him. With that said, we are fully confident the numbers will look great, in which we will then be homeward bound (yay!).
Today we played a lot. It was very fun. He was the most himself I’ve seen yet. We must have worn him out though because he slept for a very long time this afternoon. Once he woke, he showed off a little and walked down the hallway to the playroom. It was kinda funny, actually: when he was walking by a group of lady-nurses they kind of “applauded” him, which drew him to tears of embarrassment. It was cute though.
They just took off his steri strips (which were over his chest incision), so, there was some crying this evening…but all-n-all, he handled it quite well. Soooooo….I think we are going home tomorrow (that’s amazing!)! I can’t believe I’m even typing these words. Yet here we are. To think how far we’ve come, it’s even overwhelming from time-to-time.
Lastly, a friend of ours is graciously setting up a “Take Them A Meal” page (I’ll post the link soon). If you feel like encouraging us in that way, we certainly won’t turn it away. However, under no means do I want anyone to feel obligated to. Simple “Likes”, “Comments”, “Texts”, “Phone Calls” (a few of you have even sent packages) are very encouraging to us. We have felt very supported these past few weeks, and certainly the past few years. Thank you all for all your kind words, gifts, and certainly financial gifts (wow!)….we are tremendously grateful and inspired to pay-it-forward the best we can.
#GoBeckett

#ODAAT