Tag Archives: JONNY

February 2, 2013

UPDATE (2/2/13)
Welcome back to what some have labeled ‘the never ending saga’. We did not receive a phone call last night, which is typically a promising sign that Beckett had a good night. However, we were greeted this morning with the news that Beckett did race his heart rate up last night to about 200 (which is certainly not desired) for nearly 2 hours. Though we could have received much worse news than that (#perspective), this update was fairly discouraging. We aren’t really sure yet just how much of a ‘set back’ this is, but it is obviously not the news we wanted to hear. Clearly our desire is for continual progress, and not necessarily the ‘Beckett Standard’ of a few steps forward and one step back. This is a ‘gentle’ reminder that we are not done yet, and a new chapter that will include it’s own set of obstacles and hurdles. The message that is ‘easier said than done’ is to remind ourselves just how far we’ve come and all the glorious victories we’ve experienced within the last few weeks. Not one person said this would be easy, so our perspective should be properly set for this bumpy road….just sometimes weakness is a natural byproduct of our trying times.

At this point I feel as if I’m just venting and not necessarily writing anything informative.
Sooooo….please pray for peace, healing and perseverance while normal life tries to squeeze in and priorities are all the more difficult to properly balance/juggle.
…….thank you

— with Leah ‘Whiteley’ Rupp at St. Vincent’s Womens Hospital.