July 6, 2013

UPDATE (7/6/13)

Wow, what a great day……again! I posted a picture earlier today that truly did not accurately capture Beckett’s amazing demeanor this morning. We couldn’t quite get him to flash us the typical BIG Beckett Smile, but he was playful and happy…it was so refreshing to see him so quickly regaining his baseline.

My parents left today for home. We were kinda laughing at the irony of the situation, that in less than a week they both feel comfortable enough to go home (reflective of Beckett’s condition and progress). It’s been great to have nearly all of both Leah and my family around this past week. Their love and support is so evident and greatly appreciated.

We had a few more visitors again today. We seem to have daily visitors from the Riley NICU here (Reminder: We are in Riley’s PICU now), which is so awesome! We love those guys! We also had a visitor from our old camp days. It’s great how “bad situations” like these can present great opportunities to reconnect with friends we haven’t seen in a while. Life gets busy, but true friendship will always surface at times of calamity/need….it’s beautiful.

So, as I was eluding to, Beckett is certainly more himself now. He definitely is not 100%, but he is definitely on his way. Now that his eyes are open, I believe he has initiated his “I can get anyone to fall in love with me within minutes” plan….which he has successfully mastered (just ask the Peyton Manning, St. V’s NICU and Riley’s NICU medical staff).

Oh, and here’s some crazy and exciting news. I’m sure you’ve heard if me referring to something called a VapoTherm throughout my updates. The reason you’ve heard we talk about it is because Beckett has been dependent upon the VapoTherm (or a nasty Ventilator) since FEBRUARY! Well, they took it away today!!! That’s crazy! Now, he still has a nasal cannula, because he currently still needs some oxygen support, but there is no step between his current cannula and no cannula, we just go to no cannula…that means, a naked face! We cannot wait to eventually get to that point. Beckett will look like a brand new baby. Who knows when that day will come (cause I guess we are being told that we can technically go home “on oxygen”), but we will certainly keep you posted!

Hang tight. Keep praying. Feel free to visit! Share Beckett’s story. And don’t stop allowing yourself to be challenged by not only Beckett’s journey, but find the purpose and value in your own story…and share it with others. I cannot believe we seem to be trending to the end of the beginning. God is soo good! One day at a time!!

#GoBeckett
#ODAAT

— with Leah ‘Whiteley’ Rupp at Riley Hospital for Children at IU Health.

4 thoughts on “July 6, 2013

  1. All I can think of is that old song that I believe you sang at Beckett’s dedication, the Doxology: Praise God from whom all blessings flow… Definitely praising God and praying for Beckett’s healing so that little guy can enjoy the room that you have had waiting for him at your home. Thank you Lord for what you have done in Beckett’s life and what you are going to do! Amen and amen!

  2. Deb Hutch says:

    Just came in from fireworks at the lake. Shared Beckett’s story with my extended family- God’s grace. Couldn’t wait to find service to read the latest – cuurrenly smashed up against my laundry window . Certainly worth it!! Love and miss you guys! Blessings!!

  3. child of God says:

    God You are so good!!!
    Continuing to pray and pray!! 🙂

  4. Heidi Tapiaaguilar says:

    You and I have never met however we passed glances in the waiting area on July 2nd. As Beckett was taken in for heart surgery our son Cole who is 15 was taken in for brain surgery to remove a mass in the middle of his brain. We never spoke though we all prayed that day. Our surgery was to be 4 hours and was completed in 2 1/2 hours. I believe this is due to a God that hears many prayers. Our journeys are very different but the love of our children is the same. We too have been blessed with prayer and support and know the presence of God in our life, and in our son’s life. The mass in my son’s brain appears benign and was completely removed and we are at home to complete recovery, and though we still have trips in the future to Riley to be sure nothing is growing and that his brain is healing we are doing well at home. My husband actually spoke to Beckett’s grandpa and we just wanted you to know that each night we say a prayer for your Beckett, and your family. We too know the power of prayer and the love of others who love our children.

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