Heart of Beckett

UPDATE (7/7/13)

Wow, another day if progress. Beckett was quite moody today, and we even received report that he was temperamental last night as well. But we’ve been thinking about it, and we think he may possibly be in a little pain still. I mean, he did just have open heart surgery….again. He’s off at lot of the pain meds they had him on, and some of his moans and groans just sound like he may be in a little pain. We even feel like he may be having a touch of withdrawals as well. At times, when you could get him to calm down, he’d kind of rock his head back-n-forth, and look through us. It’s kinda eerie.

Also, they took his right atrium line an chest tube out. It was kinda creepy (for me), as Leah and I were allowed to stay in the room when they did it. MOREOVER, we are now allowed to hold him again. So, Leah held Beckett for a while this afternoon…and I am just waiting my turn. I actually went out for a few hours today with some friends to a driving range. It was nice to get away for a little while…but honestly, I was eager to get back to Beckett.

I know I’m jumping all over the place with this update, but our day actually began with Leah’s Dad coming down and treating us to breakfast. Unfortunately, Beckett was kind of cranky the entire time he was here, but his company is always welcomed and comforting. We even had Leah’s grandma here again in addition to some of Leah’s relatives from California. They happened to be in Indiana an decided to stop by and see our infamous Beckett. Again, he wasn’t in the best mood, but it was still nice to see them.

Honestly, that’s about it. We are being told that we are still on track to leave the PICU here sometime this week and head to Riley’s Heart Center. This is certainly a promising step towards home, and can’t wait to continue to inch closer to that amazing day of saying goodbye to new friends and hello to the old.

#GoBeckett
#ODAAT

— with Leah ‘Whiteley’ Rupp at Riley Hospital for Children at IU Health.