UPDATE (2/4/13)
Beckett had a good night and is having a good lil day today as well. They haven’t changed much, other than some of his heart medicine and continual discussions of a weaning schedule. We have been waiting to see the Cardiologist today, but it’s after 6:30pm now, so he may not be coming. Things like that are what we have been getting used to. Everyone means well, but there are many other “sick” people/kids, so sometimes what is promised doesn’t necessarily happen (hence we take “baby-steps” one day at a time, oftentimes one hour at a time).
Please keep in mind and pray for my wife, Leah. I am leaving for home tonight for a few days. I have classes, assignments, obligations, etc again for the next few days and she will be here by herself this time. As troubling as it will most likely be for me to be away from them, my concern is all the more focused on their well-being than my own. So again, please keep both Beckett and Leah in your thoughts and prayers. I desperately desire a smooth week of progress for them, healing, and a sense of love and comfort.
Lastly, and if you get a moment, please take some time to check out: https://heartofbeckett.com/. This is a challenge for me to highlight, but I am being encouraged to swallow my pride and bring attention to a benefit concert/auction taking place on February 23rd (there are more details on the website). I guess I find some boldness to spread the word because it is a cause completely focused on Beckett, and not me. In fact, we are setting up a fund in his name in which we’ve sought out advice on how to properly, ethically, purposefully do anything financially related. The website also has a giving tab. Please know that any funds are/will go to anything Beckett related and not a new flat screen TV. BUT, please don’t feel obligated to give anything, I’m not allowing a giving tab to just take your money, nor am I really asking for it. Family and Friends have strongly suggested us to do this, and so we are. This is an opportunity to allow anyone to get involved in this way if they feel led, but otherwise, please keep Beckett in your prayers. This is what I’ve asked for since the beginning, and continue to ask for. I just want a “healthy” son. I want to bring him home, do father/son things, and give him the opportunity to be as “normal” as possible. We never asked for this attention, but are thankful for what God is and has already done through this situation. I must end again by saying/quoting:
Psalm 138:1-3
I give you thanks, O Lord, with my whole heart;
before the gods I sing your praise;
I bow down toward your holy temple
and give thanks to your name for your steadfast love and your faithfulness,
for you have exalted above all things
your name and your word.
On the day I called, you answered me;
my strength of soul you increased.
(but read the rest of the chapter…it’s great!)
Thanks everyone!!! I’m so honored to even share this journey with you all. I pray that it has been just as much of a blessing to you as it has to us. To God be the Glory, everyday, and through every situation. — with Leah ‘Whiteley’ Rupp at St. Vincent Women’s Hospital.
Heart of Beckett 