Heart of Beckett

UPDATE (2/4/13)

Beckett had a good night and is having a good lil day today as well. They haven’t changed much, other than some of his heart medicine and continual discussions of a weaning schedule. We have been waiting to see the Cardiologist today, but it’s after 6:30pm now, so he may not be coming. Things like that are what we have been getting used to. Everyone means well, but there are many other “sick” people/kids, so sometimes what is promised doesn’t necessarily happen (hence we take “baby-steps” one day at a time, oftentimes one hour at a time).

Please keep in mind and pray for my wife, Leah. I am leaving for home tonight for a few days. I have classes, assignments, obligations, etc again for the next few days and she will be here by herself this time. As troubling as it will most likely be for me to be away from them, my concern is all the more focused on their well-being than my own. So again, please keep both Beckett and Leah in your thoughts and prayers. I desperately desire a smooth week of progress for them, healing, and a sense of love and comfort.

Lastly, and if you get a moment, please take some time to check out: https://heartofbeckett.com/. This is a challenge for me to highlight, but I am being encouraged to swallow my pride and bring attention to a benefit concert/auction taking place on February 23rd (there are more details on the website). I guess I find some boldness to spread the word because it is a cause completely focused on Beckett, and not me. In fact, we are setting up a fund in his name in which we’ve sought out advice on how to properly, ethically, purposefully do anything financially related. The website also has a giving tab. Please know that any funds are/will go to anything Beckett related and not a new flat screen TV. BUT, please don’t feel obligated to give anything, I’m not allowing a giving tab to just take your money, nor am I really asking for it. Family and Friends have strongly suggested us to do this, and so we are. This is an opportunity to allow anyone to get involved in this way if they feel led, but otherwise, please keep Beckett in your prayers. This is what I’ve asked for since the beginning, and continue to ask for. I just want a “healthy” son. I want to bring him home, do father/son things, and give him the opportunity to be as “normal” as possible. We never asked for this attention, but are thankful for what God is and has already done through this situation. I must end again by saying/quoting:

Psalm 138:1-3

I give you thanks, O Lord, with my whole heart;

before the gods I sing your praise;

I bow down toward your holy temple

and give thanks to your name for your steadfast love and your faithfulness,

for you have exalted above all things

your name and your word.

On the day I called, you answered me;

my strength of soul you increased.

(but read the rest of the chapter…it’s great!)

Thanks everyone!!! I’m so honored to even share this journey with you all. I pray that it has been just as much of a blessing to you as it has to us. To God be the Glory, everyday, and through every situation. — with Leah ‘Whiteley’ Rupp at St. Vincent Women’s Hospital.

UPDATE (2/3/13)

We are rejoicing in another good night. However, Beckett’s ‘flow’ on his VapoTherm (the step down from his Ventilator) did get turned back up a little because he has been working harder to breathe, which is a small step backwards but not detrimental. He received a rescue dose of morphine and it has really helped, which makes it look like withdrawal issues as opposed to respiratory issues.

We are beginning to meet some great people (nurses) over here in the NICU as we are slowly becoming acclimated to this new environment. Change is always uncomfortable, but that doesn’t mean it’s bad.

I think we are being told that everything is going to slow down a little (as far as weaning, airflow, etc)…we are being warned that progress is typically slow around here, yet there is continual progress non-the-less. Once again our patiences will be tested, but I guess Beckett is worth the wait. 😉 We cannot wait to get this lil booger home, but ‘good things come to those who wait’!

1 Chronicles 16:10-13

Glory in his holy name; let the hearts of those who seek the Lord rejoice. Look to the Lord and his strength; seek his face always. Remember the wonders he has done, his miracles, and the judgments he pronounced, you his servants, the descendants of Israel, his chosen ones, the children of Jacob.

https://heartofbeckett.com/ — with Leah ‘Whiteley’ Rupp at St. Vincent’s Womens Hospital.

UPDATE (2/2/13)

-goodnight-

Today was a bit emotionally taxing. It wasn’t necessarily immersed in tears (though some), but possibly just a culmination of exhaustion, disappointment and some fear. But I digress, Beckett is doing better and we’ve had an opportunity to discuss protocol and ‘game plans’ with the doctor…which was actually quite comforting. Rather than remaining in Tachycardia (his heart rate in the 200s) for upwards to 2 hours…they will now call the Cardiologist within 15-20 minutes if this happens again…….but it won’t happen again, right?! 😉

– simple truths –

I Peter 5:7

Cast all your anxiety on him because he cares for you.

Psalm 139:13-15

For you created my inmost being; you knit me together in my mother’s womb.

I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. — with Leah ‘Whiteley’ Rupp at St Vincent Womans Hospital.