Category Archives: Jonny

January 9, 2013

UPDATE (1/9/13)

Beckett didn’t have a bad night, nor did he really have a good night. The doctors and nurses seem slightly indecisive about the next steps as the surgeon is anxious to close up Beckett’s chest (to decrease the chances of infection), but the other doctors and nurses would like to possibly wait a day to give Beckett a chance to rest a little. Sooo, it may be a fairly uneventful day (yeah right), or they may consider trying to close him up at some point today. Honestly, we have no idea…we just sit and wait. Hope that helps, thanks for the prayers. — with Leah ‘Whiteley’ Rupp at Peyton Manning Children’s Hospital.

January 8, 2013

UPDATE (1/8/13) -goodnight again-

Sooo, this will be short because we need to get some sleep. :-\ His bleeding has drastically slowed down…Praise The Lord! Please pray for an uneventful/healthy night. Goodnight friends. — with Leah ‘Whiteley’ Rupp at Peyton Manning Children’s Hospital.

January 8, 2013

UPDATE (1/8/13) -sorry, one more update-

After I just posted my ‘goodnight’ update, we decided to go back and see him one more time to say goodnight. When we arrived, they calmly inform us that his bleeding hasn’t really slowed down since the surgery (and it should have a lil more than it has by now). So I’ve decided to write one more time that he apparently stills needs prayer for some healthy/natural clotting, otherwise they may need to call the surgeon back in tonight.

…..just trying to keep you all posted. Thanks. — with Leah ‘Whiteley’ Rupp at Peyton Manning Children’s Hospital.

January 8, 2013

UPDATE (1/8/13) -goodnight-

Wow, what a day! We woke up this morning prepared for another day of weaning and ended with a trip to the Cath Lab (it takes about 10 people to move Beckett) a trip to the OR for surgery (#2 now), then back to the PICU (a different room this time) to conclude the evening. Beckett is doing ‘ok’, taking into consideration all that has taken place today for that lil man. He is bleeding some right now (which we are being told is expected when coming from surgery), so the plan for the night is to lessen (or stop) the bleeding and get him stable once again. We are being told that they really want to try to pull him off of Ecmo tomorrow though (which we are so excited about, yet quite scared for). Please pray that he has a ‘good’ night, and a great/successful day tomorrow. Crazy, Crazy, Crazy… And as always, the prayers and support are A.MAZ.ING! Bless you all, have a good night! — with Leah ‘Whiteley’ Rupp at Peyton Manning Children’s Hospital.

January 8, 2013

UPDATE (1/8/13)

Well, it’s a little after 1:00pm right now and we have just been informed that they will be taking Beckett to the Cath Lab to take more accurate images of Beckets chest/heart. They want to get a better look with hopes to find why Beckett doesn’t seem to ‘want’ to come off of Ecmo completely. There is concern the shunt they put in may have a clot. There are minimum risks to this step, yet there are always risks. Additionally, there is a chance they may not find anything wrong in which they may not then know how to proceed. This is yet another trying time for Beckett, Leah and myself. Maybe it’s just exhaustion, or maybe it’s exhaustion and this ‘one more thing’ lil Beckett now has to go through that has worn us out. We need continual prayer and support (as you all have been so gracious and generous to give). Thank you! (I’ll try to send another update later tonight.) — with Leah ‘Whiteley’ Rupp at Peyton Manning Children’s Hospital.

January 7, 2013

UPDATE (1/7/13)

As many of you saw, lil Beckett gave us a precious lil gift this morning by opening his eyes once again as if to say, ‘I’m still here, it’s gonna be ok…try not to loose hope’. ‘Hope’ is a tricky word to appropriately conceptualize. So much of me wants to cling to hope, yet I am trained (in business) to ‘set proper expectations’ or to ‘under-promise and over-deliver’. Naturally I then become afraid to ‘give-in’ to hope as if to set myself up for an even deeper wound if/when hope is assumed. I believe some timidity is a normal and acceptable emotion, but as Moses said to the Israelites, ‘The Lord will fight for you; you need only to be still’. Beckett is still stable, but unfortunately he is not yet ready to be taken off of Ecmo entirely. The weaning has gone well, but the gap between its assistance and complete independence is a bit of a leap. We have been warned that tomorrow may be another Psalm 46:10 kind of day, so please continue to hope and pray for the continual strengthening of his heart and body. We are far from over….but Beckett is here to stay! ‘May the best days of our past, be the worst days of our future.’ — with Leah ‘Whiteley’ Rupp at Peyton Manning Children’s Hospital.

January 6, 2013

Leah ‘caught’ me praying for/with Beckett this morning. Love my boy! #ProudDaddy — with Leah ‘Whiteley’ Rupp at Peyton Manning Children’s Hospital.
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January 6, 2013

UPDATE (1/6/13)

Beckett Jude is doing ‘great’ (I feel that quotes are necessary being that he is still on Ecmo and his chest has not yet been closed)! Additionally, he’s been doing so well that they began weaning him off the machine earlier today (whereas they were going to be waiting to begin that process until Monday or Tuesday). We are so encouraged, yet understandably nervous, as we enter this next stage. I hope that I continue to bore you all with these non-dramatic updates of slow continual progress. This has been such an answer to prayer as his recovery has been such a testimony to the Lord’s grace and sovereignty to us as a family. I will continue to strive to keep posting updates as these next few days may be difficult….but we are certainly praying for a smooth 48 hours (and beyond). — with Leah ‘Whiteley’ Rupp at Peyton Manning Children’s Hospital.

January 5, 2013

Beckett had another good night…many more to come, or he’s grounded! — with Leah ‘Whiteley’ Rupp at Peyton Manning Children’s Hospital.

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