Heart of Beckett

UPDATE (1/17/13)

Beckett had an interesting night. Late last night, while we were still in his room, Beckett played a new game with us and DROPPED his heart rate to about 65….that definitely through us for a loop. Afterwards, his fluctuations began again, but this time between the 60s and 200s (which is certainly not ideal). He periodically continued these fluctuations throughout the night (which successfully destroyed any attempt to sleep well).

This morning, Beckett had a MRV (similar to an MRI), to get a better look at the clot in his brain (we’ll hopefully receive the results of that later today), but overall we are content with the minimal findings of any complications in his brain.

He’s currently resting at a heart rate of about 100. Though we rather see it resting at around 120, the Doctors are saying that we’d rather have a resting heart rate that’s a lil low than that sporadic heart rhythm we were seeing yesterday (which obviously makes sense). We hope to endure an uneventful day (other than all the transportation stuff from this morning), and I fully intent to post a really boring update later tonight. 😉 Hope that helps explain most of our ‘current affairs’. Blessings to y’all. Romans 8:28 — with Leah ‘Whiteley’ Rupp at Peyton Manning Children’s Hospital.

UPDATE (1/16/12) -goodnight (I hope)-

Sorry y’all…I just noticed that its already about 10:30pm and I haven’t posted anything yet for an update. Beckett is ‘stable’, but he keeps having lil episodes where his heart rate begins beating erratically (it is exhausting and quite scary to watch). But he’s hanging in there and is doing ‘ok’.

We also got the results of his MRI, which in short was also ‘ok’ (could have been a lot worse, they are saying). He does have one blood clot that they are treating (which can be fairly serious), but overall his brain looks quite good. We are very pleased, but that clot will need to be closely monitored and treated.

Lastly, we need to keep an eye on his ‘bleeding’ from his chest. His chest is still closed and has continuous minor bleeding from it. Now he’s on heparin (a blood thinner), for his blood clot in his brain, so that may hinder (or slow down) his chest from healing.

It’s been a crazy day and very exhausting….but Beckett is still here and is still fighting. Please pray for a great night of ‘healing’ and rest. — with Leah ‘Whiteley’ Rupp at Peyton Manning Children’s Hospital.

UPDATE (1/16/13)

-The Roller Coaster within the Roller Coaster-

How much can one take? We’ve been sitting by his side since this morning just praying, holding his hand, (I’ve been) playing guitar, and watching his monitor. We have no idea why his heart has decided to do this all of a sudden (being that he has had a few stellar days). Usually something like this would have happened immediately following surgery, or his chest being closed, etc….not days afterwards. He has been given some medicine, and it seems like everyone in the hospital is just ‘watching’. We are praying that he can pull himself out of this. I’ll try to post again once I know more, but sometimes it’s hard to sit down to gather my thoughts like this (you guys deserve it though). Thanks for the prayers and concerns…I need to go eat more than the muffin I had this morning. 😉

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Jonah 2

“When my life was ebbing away, I remembered you, Lord, and my prayer rose to you ,…..I waited patiently for The Lord; He turned to me and heard my cry! He lifted me out of the slimy pit, out of the mud and mire; He set my feet on a rock.” — with Leah ‘Whiteley’ Rupp at Peyton Manning Children’s Hospital.

2 Corinthians 12:9

But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me. That is why, for Christ’s sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong.

UPDATE (1/16/13)

It’s been 2 weeks since Beckett’s initial surgery, and he’s been quite the trooper. He’s had 7 ‘surgeries’ now since then and had been doing great these past few days. We woke this morning with many Doctors and Nurses in his room diagnosing an abnormal heart rhythm. Beckett’s heart would jump from 150 to 200 back down to 180 and then hit 230, etc. etc. Needless to say, it has been a very ‘trying’ and scary morning for us. We are still sitting in the waiting room to hear if they are able to get his heart under control with some medicine. Family have all officially gone back home and back to work…as if God was trying to say…’trust in ME’. We truly believe God CAN heal Beckett, we now pray for the desires of our heart to be aligned with the Lord’s will for Beckett’s life. Please pray for our son! Psalm 46:10 — with Leah ‘Whiteley’ Rupp at Peyton Manning Children’s Hospital.

UPDATE (1/15/13)

Beckett moved rooms again today…we’re getting a tour of the entire hospital (it seems like). 😉 We are being told that this was a good thing. They have moved us closer to the nurses station, and we now have a nurse who takes care of Beckett, AND the room next door. It’s nice not being such a ‘priority’ any longer, but it’s all the more nerve-racking to not have a nurse constantly by his side anymore. He now has a feeding tube in his nose and is beginning to ‘eat’. Also, tomorrow morning is kind of a big-deal because they are officially doing an MRI on his brain due to the complications they had a few weeks ago with the lack of oxygen to his brain during his cardiac arrest after his initial surgery. Please pray for good results. We really are progressing, but I feel as if the anxiety-rush and adrenaline from the last few weeks are starting to wear off because Leah and I aren’t sleeping very well and everyone keeps commenting as to how tired we look (thanks). We are thankful, however, for the progress and are loving every moment we are blessed with our son. Family is officially heading home and going back to work, but take note that if anyone wants to visit…they are locking down all pediatric hospitals in Indiana from anyone under 18 years old to even enter the building (something to do with flu-season). Thanks again everyone….you all are amazing! Go Beckett! — with Leah ‘Whiteley’ Rupp at Peyton Manning Children’s Hospital.

UPDATE (1/13/13)

Yet another quiet day (Praise. The. Lord.)! With all that we have experienced thus far, it was very difficult to not be ‘on edge’ all day today (and this weekend) thinking that at any moment they will be giving us bad news. I know that is a horrible mindset, so we do actively fight against it by singing praise and giving thanks to God for every moment we have with Beckett. Beckett has had such a great weekend (thus far), that we are being told that they may even try again to close his chest as early as tomorrow. As you all have probably learned by now, ‘we’ll cross that bring when we get there’ with how quickly things/information changes around here. So grateful for ALL of your support. We are just so humbled by everyone seeking out ways to help and even spreading the word of our lil Beckett. He truly is a miracle baby (you should hear the doctors and nurses talk about him), he’s our amazing son, and we love him so much. Can’t wait to show him off someday soon! — with Leah ‘Whiteley’ Rupp at Peyton Manning Children’s Hospital.